I would love to hear your story! Anything, even if it’s terribly long, will help me bunches. And I’m so glad that you like the idea!
I have another year for research and writing and then about 6 more months before the film has been shot and edited, so marketing is still in the air. As with any independent film, I’ll be mostly limited to social media and film festivals and hope that a distributor may want to distribute it or donate the funds to make it a feature length picture. I’m going to be on the lookout for other opportunities though!
Well, I’m definitely not fully recovered, but I do what I can to not let PPPD rule my life anymore. It took many opportunities and days from me already, so I’ve decided to stop letting it win. I’m currently doing physical therapy every day, which helps. My physical therapist also told me not to push my symptoms past a 4 out of 10 and to stop whatever I’m doing once I get there. Her standard was, “If you’re feeling symptoms for 20 minutes after the activity, you’ve done too much.” A lot of it, for me, has been a mindset to cope instead of control my 3PD. My story has been told on a separate post, but in short, I got a concussion in February of 2018. Since then, I had worsening symptoms and NO answers from doctors about why I was feeling dizzy. It wasn’t until the 8th doctor (who was a vestibular specialist at the best hospital in my state) that I got a diagnosis. If I had just given up on finding treatment, which I almost did, I would have been misdiagnosed with MAV by a previous neuro or I would have had to drop out of college because I was unable to function for about a month during the summer of 2018.
If you’re reading this, please please tell your story so that others will know that they are not alone. It’s time we stopped feeling like we were crazy because all of our test results came back normal.