My name is Tammy. I am 41 with a husband and 2 kids - ages 12 and 9. I live in NC. Here is my story:
I was diagnosed with MAV in April 2011. I was given valium to take as needed. I had suffered for 6 months prior to finally getting my diagnosis. My main complaint and symptom is constant dizziness. Rarely is there a headache, just dizzy 24/7. The valium always worked but I feel that after the 6 months of suffering I was beginning to feel better on my own anyway. Dizzy symptoms weren’t nearly as bad by April as when the originally hit me in November 2010. I only had to take the valium a very few times and would go months without needing it at all. Felt great!
November 2012 I fell and hit my head, actually blacked out from stimulating my vagal nerve from drinking too fast. (I don’t know if this has anything to do with my recurring MAV or not).
Exactly one month later, the dizziness returned. Valium no longer does anything for me. I called my doc who diagnosed me 2 yrs ago (he is a neurootologist). He demanded I have another MRI to rule out any other probs. I did and there were no changes since my last one 2 years ago. He said he didn’t know why the valium stopped working. This discouraged me. I have since found a new doctor 2 hours away at Duke University who specializes in migraines and I am going to see him but not until Feb 27. My friend has MAV too and this is the doctor she sees.
Desperate and reading these boards I decided to try the Heal Your Headache plan. I am almost done reading it. My questions about the diet are the following:
It says not to eat whey protein but can you eat whey?
It says not to eat less than day old bread, bagels etc because of yeast and you can’t have yeast extract but can I buy Thomas bagels? They have yeast as an ingredient but not yeast extract.
I also used to think that sugar caused my dizziness to worsen but that doesn’t seem to be an issue in the book. Does anyone have problems with sugar?
I do know that chocolate and caffeine will make my very dizzy. Up until reading this book I thought those were my only triggers but now I am thinking otherwise. I have given up chocolate and caffeine since this started a month ago. I was doing decaf though until I started reading on this forum and found out that still had caffeine in it. I have not had decaf in 3 days.
I also noticed it said no caseinate. Does sodium casienate count?
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I tend to have a bad day dizzy wise and then slowly will feel better over the course of the next few days until I finally get to a point where I almost feel normal (about day 6 or so) and then it will hit me again. Today is one of the bad days. I think it is from dinner last night. Since I have just started the book I didn’t realize how bad canned soup was and my husband made a chicken dinner with cream of chicken soup in it. I am attributing my bad day to that. Don’t know for sure though as this is a regular pattern for me.
I also sleep A LOT! I got up at 8 today, felt groggy all day, fell asleep for 2 hours this afternoon and felt better when I woke up. I still don’t feel normal but better than this morning. I always seem to have the morning fog and then it gets better throughout the day. I have to take a nap everyday or I can’t function. I hate this part because it seems like all my kids see is me sleeping. I feel like my eyes and brain are completely fried by the time I get home from work and sleeping is the only thing that makes me feel better.
I do enjoy learning about all of this information on this forum. It is great and makes me feel better knowing I am not the only one suffering from all of this. When I am feeling anxious about it all I tend to read here and it makes me feel better.
I look forward to meeting all of you. Thanks in advance to your responses.