— Begin quote from “inafog”
There is no known cause for migraines that is recognized by neurologists. genetics is not a cause…it only speaks to whether people have a predisposition.
— End quote
You are incorrect. Migraine is caused by abnormal brain chemistry and is a genetic difference, in most cases inherited from one or both of your parents. It is a chronic neurological illness that you were born with, meaning you CANNOT get rid of it. You can do a lot to manage the disease, but you cannot simply wish it away or “cure” it with any treatment at present. Research shows us that migraine involves what’s called an ionopathy or abnormality of the flow of chemicals in your brain across cell membranes, including serotonin, dopamine, and norepinephrine. Serotonin is a critically important chemical messenger best known for its role in depression and other mental health disorders. Serotonin is also part of the pain-regulation process, and migraineurs like us have certain abnormalities in their serotonin function.
— Begin quote from “inafog”
The current strategy is to treat the symptoms, not the cause
— End quote
Another common way people describe incurable diseases and how alternative therapists unfortunately classify western medicine. This is true of say taking an aspirin to stop the pain of a headache. Pain killers temporarily block the pain pathways – and so we could say it’s a symptom treatment just like an antihistamine is for a common cold. Taking a preventative migraine medication is not at all simply “treating the symptoms”. What we are doing is raising our threshold so that the migraine cascade and cortical spreading depression aren’t fired off and reducing central sensitisation which is heightened through repreated migraine attacks. Very different. To cure this disease you’d have to isolate and change the genetics of the person suffering from migraine disease and currently this is not possible.
— Begin quote from “inafog”
So if you are measuring a strategy based upon “cure”, then I am likely the only one who has found that, because I found a reason for my migraines, even after many diagnoses of MAV.
— End quote
Incorrect. If you do have migraine and messing around with your CSF pressure has alleviated your symptoms then you have probably successfully managed a trigger. I believe Lisa tried this which unfortunately made everything worse for her for a period of time.
— Begin quote from “inafog”
The people who ultimately find a cure for their chronic migraines will not be the ones who continue to treat symptoms using migraine strategies, it will be the ones who seek out some of the new strategies which are trying to find the cure for it.
— End quote
There is no cure for migraine Inafog. I hate to put a damper on your thinking here but what you’re saying is just factually wrong. Sure we need to look for new ways to treat migraine more successfully for more people but it’s no easy task because it’s a complex disease. Furthermore there just has not been enough money thrown into migraine research like breast cancer for example. We’re still using drugs from 30-40 years ago in some cases. But as I have been saying repeatedly now, the logic and evidence is just not there for using bioidenticals as a way to manage this disease. People need to be aware of this.
— Begin quote from “inafog”
And you are comparing apples and oranges here, just because you got sucked into a disreputable program, is not anything like the one that Lisa is in.
— End quote
How is the Migraine Program different from what Lisa is trying apart from a different and well-intentioned doctor? If I have this wrong please let me know. I see no difference. Blood tests happen, they look at your hormone levels and then supplement those hormones that are not in “balance” or at the correct levels with bioidenticals.
— Begin quote from “inafog”
I just felt the need to defend her, as she has been more sick than almost anyone on this website, and I think it is admirable that she is fighting so hard.
— End quote
There is no need to defend Lisa. No one is having a go at Lisa, least of all me. It is the treatment we are interested in. This is what we do at mvertigo. I know Lisa is having a really shitty time and it sucks. No one wants to see her feel well again more than I but I feel obliged to make sure we all have the most accurate and correct information available before embarking on time-consuming and potentially costly treatments. Three of us have already been down this road already and it failed.
— Begin quote from “inafog”
there have been more problems that have come up due to the amount of damage done while I had intracranial hypotension from my leak. the thyroid issue is one of those issues.
— End quote
There were side effects and damage done by this procedure? That’s terrible!
— Begin quote from “inafog”
I am truly sorry that you got taken by a scam in your search for a cure. I understand how that could have left a negative feeling about the entire strategy of hormones playing a role in this.
— End quote
No need to feel sorry. I was over it a long time ago. I learned a hard lesson really - about thinking there is a migraine cure through the use of hormones (no idea why I fell for that in hindsight) and getting roped into something that didn’t hold water. But again, I see no difference in what the three of us tried and what this is.
All the best,
Scott