After 2 and a half years, I’m finally feeling like my old self. I saw Dr Surenthiran a couple of weeks ago and he has told me I can start coming off Pizotifen in April. Yay!!
He said I’ve done very well and I have an 80% chance of it not returning. Just praying I’m not in the 20%. He advised me still not to overdo the activity. But I have been able to do so much more without getting ill or any symptoms.
Dr Surenthiran also said I can start reintroducing foods, but tbh I wasn’t that great at sticking to the diet. I think it’s the meds that have got me here and I am still on magnesium, B2 and CoQ10.
I am so much better and never thought it would happen, so hope this helps people out there suffering with this monster, there is light at the end of the tunnel and you do recover!