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I'm a newbie here. Are these MAV symptoms? And my brief story


#21

Keep it up Erik!!! Its a tough drug to crack and you are doing great…


#22

Amazing to hear this Erik ! :slight_smile:


#23

I’m up to 50mg of Topirimate! As far as I can tell only good things have come about: reduced head pressure, reduced dizziness and better sleep. In addition, my muscle stiffness/pain is sooo much less and exercise is much more enjoyable, probably will stop PT sometime soon. I have a bit of a sweet taste in my mouth and there is some tingling now and then in my face and mouth, but its so mild I really don’t care.

I’ll stay at 50mg topirimate until my next Neuro appointment next month. Wondering if I can dial back the 360mg Verapamil to see if I feel less dopey and depressed. I swear my pulse is forever stuck at 50bpm, lol…


#24

Well done on the Topo ! Good luck Erik.


#25

Oh, you and me both, Erik. I keep tapping the BP monitor in hope! Although mine does move when I exercise. Eventually. Helen


#26

Once mine was 47 and I’m not even on Pitz. I am on atenolol, though, so similar and I run about 50. Forgot to take it one day this week. My heart decided to beat on random and then just run in a panic for hours with a headache. I miss the days before MAV when I was attentive enough to remember to take my meds.


#27

It’s the betablockers (my Propranol, yr atenolol) and (Erik’s Verapamil) calcium channel blockers get to lower the pulse rate. Supposed to lower BP Too but I’d so lucky. Doesn’t do a thing for me. Perhaps the drugs need to read the Patient Info Sheet. Helen


#28

Atenolol is my bp med. It does lower my bp. Been on it since college. High bp runs in my family.


#29

Amazing to read this Eric ! :slight_smile: