The Vestibular Migraine & Secondary Hydrops Community
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I’ve seen several neurologists and they’ve all said MAV


#21

Hi,
I am a mother of an 11 year old boy who got VM when he was 9. He is now 11 and I have just joined this website ( for reassurance and empathy because my heart goes out to him when he is not well and he is such a soldier and never moans). It is amazing the things you gravitate towords naturally because with the head pressure I bought him a mirgraine pack that you keep in fridge and he puts it on whenever he is suffering. But the other thing I did, and I genuinely believe the reason he has been symptom free more or less from January -may ( it has started up again), is because I have controlled and structured his sleep. Mon- Sunday he is in bed at 8.30-9pm and he gets up at more or less the same time. I noticed when he was going to sleep overs the child used to take a week to 2 weeks to get over them and have the dizziness etc and everything else that comes with it. so I cut all of them out, which his agreement, and he was amazing until the middle of his exams. His school put on 3 tests in one day… there is a surprise the dizziness came back! But well done you and hope you contain the VM going forward…


#22

Hi Amy, I’m thinking to try nort next. Do you get water retention on this? Ta


#23

I do t think it was he nort but prop that gave me water retention was ok with just nort :grimacing:


#24

Love this doc. Thanks for putting this together and sharing. I am in Cali so more useful for me :pray: