Hello everyone! My dizziness started when I was 13 in 2003 after having strep throat and severe sinus problems and was prescribed strong antibiotics and antihistamines. I felt like I was on a boat when I was not. I felt like I was moving 24/7 when I was not. I stopped being able to attend school and hanging out with my friends. I also could not go on boats, planes, and even baths made it worse. My life was fully impacted by the dizziness. I am 26 now. I want to tell anyone who is reading this not to give up hope! When I was 17, I first started using TheDizzyLounge web forum for support. Someone from there suggested this web forum to me. That year I had seen Dr. Timothy Hain for the first time. He, along with the other top “dizzy doctors” in St. Louis diagnosed me with Vestibular Migraine. otherwise known as MAV and “silent migraine”. At the time I did not get any headaches. But, no medicines were working. Topamax and Amitriptyline did nothing. Verapamil, Keppra, and Inderal made it worse. I’m talking to the point where I was running into the walls when I tried to walk. Depakote and Lamictal didn’t work and BOTH gave me Stevens Johnsons syndrome. In 2008 I started getting chronic daily headaches/migraines with aura. In 2010, I finally went to the Mayoclinic. The neurologist agreed that it was indeed Migraine Associated Vertigo since the dizziness did get worse with migraines. BUT, the other doctors diagnosed me with Chronic Subjective Dizziness. I started using SSRIs and with Paxil, I am back to being able to going on a boat with hardly any dizziness! I grew up on boats and going to the lake every weekend. THIS IS HUGE FOR ME!!! The dizziness is 95% gone. And I hope by sharing this with you "MAV"ers, maybe it will help you!
All of my love and prayers for you,
PS. I still get chronic migraine headaches. I would greatly appreciate any suggestions/support.