Hi there. I’ve been dealing with vestibular migraines for about twenty years. They worsened about four years ago and it is one of the reasons why I quit working.
I take pizotifen which helps. So they are less severe, but still happen. This med has also caused me to gain weight. So I am bigger than I have ever been.
Changing seasons seems to be an issue; I only recently identified this. In the month before Winter and the month before Summer, I seem to have many more episodes. I am also triggered if I’m not hydrated enough, stressed, tired or exposed to too much motion (e.g. railway stations are a hazard). The worst part for me is the loss of balance and I sometimes worry if it will be an issue as I get older. I’ve had three falls already: once downstairs and twice flat on my face. To some degree I’m living around known patterns. I have great friends who will help me out if I’m too wobbly.
There is an upside. For no particular reason, I’ve been okay for about eight weeks. It feels like a minor miracle when the ground doesn’t move about so much.
I’ve been part of various facebook groups and this has been somewhat helpful. I decided that I would like a forum better. While I’m okay right now, I don’t know if it will last. I would also like to be able to share my experiences in case it is helpful to anyone out there. I have a great neurologist, but he’s not with me every day. The support of fellow sufferers can be so valuable.
I’m in Australia.