Hi I’m new here, I was only diagnosed with VM last week though my symptoms started full time 6 months ago.
The first few months I was convinced that the symptoms (dizziness, bad brain fog, horrible pressure in my head especially when I sit up or stand up) were coming from my neck because they seemed to get worse particularly when I bent my head down and up again (e.g. looking at phone) and when I turned my head round to the side. For instance, trying to talk to someone who is sitting next to me makes me feel awful unless I just don’t look at them!!) I did a neck MRI and it did show a bulging and torn disc at C6/C7 which seemed to confirm my feelings. However after a lot of doctors visits and a trip to a specialist vertigo clinic I got diagnosed with VM and it does make sense to me as I did get a few migraines in the past couple of years where I experienced dizziness and I don’t only get dizzy when I move my head but have other triggers as well (worse when I get perimenopausal hot flashes or strong smells or if my stomach is off).
However what I was wondering is if anyone else is mainly triggered by head movements? I have to walk around very stiffly with my head in one straight position and try not to move my head much at all if I want to reduce the symptoms. In fact wearing a soft neck collar helps. I’ve looked at a couple of youtube videos of people with VM and they seem to be bending their necks looking down at the camera no problem, so I wondered if my symptom is very unusual?
Any feedback would be greatly appreciated :-)!!