My mom has been having similar episodes to what you described above! We haven’t found anyone else that has the “freezing episodes” with the Vestibular Migraines and her diagnosis took over a year to figure out. Would love any help or advice from you!
My moms symptoms start off with being dizzy, nauseous, really bad headaches, feels like someone is choking her. It then turns into spinning out of control, hard to catch her breath, loss of speech, and she can’t move her body. Then her eyes lock on something and she freezes. She has all the same symptoms that you described, she can hear everything and is aware that she is frozen, but she cant move. It’s like a cationic state with the waxy limbs. The only thing that gets her out of her episodes is 1mg of Ativan (she had episodes that have lasted for 7 hours.) She’s been dealing with these episodes since Feb 2018 and they just keep getting worse. Shes been having them everyday lately, or at least 1-2 a week. She was tested for everything you could possible get tested for, and it all came back normal. So the doctors told her she had FND (functional neurological disorder) and shes been going to Cognitive Behavioral Therapy, acupuncture, and massages to try and help with all her symptoms. Not a single doctor could tell us why she was freezing!! so frustrating. SO, a few weeks ago she finally had her family doctor schedule her with a ENT Neurologist they ended up doing a 3 hour balance test on her. This is when they found out she had Vestibular Migraines and also Vertigo in her right ear, which all the doctors kept telling her she didn’t have.
We now are in the process of slowing getting her off the Ativan, because its the only thing that has helped her from getting the episodes, but really its just masking the symptoms and not helping her get better. And the doctors are having her do Vestibular Migraine Physical Therapy, which she just started this week. She also was prescribed Topomax to treat the migraines, but she’s worried about the side effects. Have you tried Topomax? Are there any meds you’ve tried that have worked the best? Any help with this would be greatly appreciated! We are looking into Cleveland Clinic that specializes in Vestibular Migraines, she has an appointment scheduled at the end of August. Has anyone had any treatment there? Any success?
Also, i should add to all of this … my mom was also diagnosed with TD (Tardive Dyskinesia) in Feb from going off her medicine Abilify. So, that on top of all of this causes her symptoms to be even worse. TD and VM all cause a lot of anxiety, so they have her on Busebar which has really been helping!
Thank you to anyone who reads this! We would love some help!