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Fluid in eustacian tube


#63

Correct.

Didn’t get obvious symptoms in my good ear until perhaps 12 months after the injury.

How are you doing at the moment? How long ago was your incident?


#64

Have you had an audiogram done? It tests pressure in your ear to detect fluid. I was misdiagnosed for 6 years with eustachian tube dysfunction and fluid in my middle ear, but in reality it was vestibular migraine causing my symptoms. Ear fullness can be a migraine symptom. Doctors can’t see fluid in your ear unless your eardrum is bulged outward, and often diagnose ear fullness as fluid because they are unaware of other causes. You may have fluid trapped but i just wanted to tell you my experience to make sure you haven’t been misdiagnosed. I was given steroid nasal sprays which only worsened my symptoms because they trigger migraines. So do be watchful.


#65

‘Vestibular migraine’ is not an aetiology, its a class of condition, defined by a set of symptoms (so might be several things/different root causes with the same constellation of symptoms) Migraine can’t explain fluid in your middle ear, its a neurological disorder. Let’s not lose a sense of reality here!

I’ve woken up every day for 3.5 years with some level of fluid in my middle ear and sometimes it squishes in my eustachian tube (easy to prove, I can massage it through my neck).

I only started having migraines a year into that. For a glorious 6 months I was otherwise completely symptom free. It is not migraine. Anyone who has told you that is going well beyond what science has so far established… That kind of BS makes me very angry and gives the discipline a bad name.

Agree it might not be ETD (I understand you can test for ETD with a simple test of ear drum response to pressure) … I suspect it’s an artefact of PLF or if chronic more likely Secondary Hydrops (which can be brought on by an injury that may or may not have involved PLF). Secondary Hydrops has the same symptoms and treatment as MAV (including the diet!) Go figure!

In short: You may well have a reasonable diagnosis of vestibular migraine (I have had a MAV diagnosis as well as, separately, diagnoses of Secondary Hydrops), but that doesn’t explain the fluid in your ear in so far as it doesn’t explain the root cause. No-one in science has determined a root cause. That’s the rub. In my case I was (un)lucky to have an ear injury immediately prior to my dizziness, so the culprit is very obvious & straightforward (but something a highly paid neuro-oto initially ignored because of the crazy reality distortion field that so blights this area of medicine). As far as I can judge the only reason I’ve not been labeled with MAV by all doctors is because I have clear evidence of trauma.


#66

I love that my little ole “Fluid in eustacian (sic) tube” thread has been so fruitful a discussion!

So I consulted doctor Google after starting this conversation and began holding my nose and blowing out my ears a few times a day, and that seemed to clear up my symptoms. (Don’t try this at home kids without your doctor’s permission!) I had been hiking the PCT and flying a lot this summer so the elevation was affecting me. I seem to be done with those symptoms (fluid in ear feeling) but the ENT warned they may come back. She recommended taking Afrin on flights, which I did not do over the last few days (flying 4 times in 5 days.)

I agree with James here - you can’t always have a confirmed diagnosis; I certainly don’t. I have been told: secondary hydrops, MAV, MdDS and my all-time favorite, “vestibular idiopathy with unknown etiology.” That last is the most accurate :slight_smile:


#67

Agree that if you are suffering from this crp you need to make sure your tubes are clear for flights or you are inviting trouble. In the UK we have sudafed. A good yawn and a neck massage might help too though :slight_smile:


#68

How long did you tubes seemed blocked for? I was diagnosed with ETD aswell, haven’t had a days rest in nearly four months with it to some extent or the other… defo related to my VM diagnosis though as comes on more if I eat, smoke or drink alcohol etc. Any tips how to get rid as I’ve tried lots including nasal sprays also from docs x


#69

I was misdiagnosed with fluid in my eustachian tubes for 6 years. It was actually vestibular migraine. The feeling of fluid, or fullness, or pressure in the ears is a vestibular migraine symptom, caused by either swollen blood vessels, or nerve sensations (so goes the theory). You can feel that fluid is trapped there, and can even hear crackling, but there is so fluid. The only way to know fluid for sure is an audiogram, which tests ear pressure. I had one done and it was normal so the ENT said there is no fluid. It’s a migraine symptom. I was given a steroid nasal spray by my GP, which only increased the severity ofmy symptoms, which makes total sense because blood vessel dilaters trigger migraines. If you are on any decongestants, stop taking them. Get an audiogram done if you haven’t already to test for fluid. A doctor cannot diagnose fluid by looking in your ear, they cannot see it, they just assume all ear fullness is caused by fluid. I can’t believe my vestibular migraine was misdiagnosed for 6 years as being eustachian tube dysfunction, but apparently its quite a common misdiagnosis.


#70

It’s fluid. Let’s not let some doctors create a ridiculous reality distortion field. I can actually squish that fluid in my tube by massaging the back of my neck. I’ve heard it glugging, bubbling, popping. It’s definitely fluid! Sometimes it dulls your hearing, even can make you hear your own voice, then you can feel it leak away and your hearing returns to normal.

And I doubt its related to nerves or blood, it’s probably perilymph released from the inner ear.

And btw, they’ve found a pressure release valve in the inner ear this year - imagine - a major part of the inner ear ONLY DISCOVERED in 2018! Gives you a clue to the state of the discipline!

https://www.mvertigo.org/t/inner-ear-pressure-release-valve-found/15685?u=turnitaround

On top of this it could well be a spontaneous PLF to dump pressure (though this is contentious).

This is the reason people don’t get glaucoma of the ear - it has an ability to release over-pressure and this protects the inner ear structures and its neurons - and your balance & hearing!

And doesn’t it strike you as more than co-incidence that the eustachian tube passes into your throat and as such carries away any additional fluid harmlessly? It’s almost as if this has evolved to happen?!

Furthermore they’ve started finding evidence of Hydrops (inner ear pressure) in patients initially diagnosed with VM. That’s because scanner techonology has finally got to level it needs to get to identify Hydrops on MRI in the clinic. We’re about to see a big change in diagnosis I suspect and possibly a major change in the hypotheses. I’m sure this will lead to further insights, better focus and new solutions.

https://www.mvertigo.org/t/oh-oh-bingo-this-is-huge-hydrops-found-in-people-diagnosed-with-mav-vm/14336?u=turnitaround

NB If reading medical journals makes you anxious, don’t do it


#71

Fair enough, but i would still want tests to confirm actual fluid, because then you can work on getting the right treatment or looking at causes of why the fluid is trapped, or if you have an allergy or physical problem. I had an mri of the ears which found everything normal, so i know there is no fluid in my case and the vm diagnosis is correct. If you haven’t had any scans or an audiogram then i’d definitely get them done.


#72

And that’s a can of worms.

There is no current clinical protocol in the West to collect or test this fluid (presumably because of a mainly conservative approach - they’d have to open up your ear drum to get to it).

Studies have happened in Japan in relation to PLF to identify perilymph in the middle ear space.

e.g https://www.tandfonline.com/doi/abs/10.3109/00016480903508910?journalCode=ioto20

Shocking really given how common this symptom is.

Most clinical MRI cannot resolve the inner ear - have you looked at yours in detail? Can you see the Reissner membrane? MRI, as I understand it, is currently used to rule out neuroma’s and look for signs of MS? The commonly available ones in the clinic are not at all a good tool to look at the inner ear.

This is where the big leap is going to happen.

Most clinical MRI is max 1 or 2T. The new ones are 3T and combined with other improvements they can start to resolve parts of the inner ear.

Most images of the inner ear we see in journals come from sacrificed animals (sadly).

the “VM” diagnosis is presumably correct but purely on meeting committee criteria. It doesn’t actually explain your symptoms, just agrees you have a set of them that match the criteria. That’s how you get such a diagnosis. It explains zilch!