Not surprising I suppose. āOurā MAV we agree is hormonal, somehow, and we are level pegging in all respects except I donāt get the headache like you. I think weāve got same condition, whatever that thing is. Seems more we discuss it, more similarities we find. Sisters under the skin obviously! Helen
Similar to my experience. I would get up and feel worse all morning. By afternoon I would start to feel a bit better. Almost as if you were ārelearningā your balance. It might also have to do with position and later metabolism for some.
I suspect lying down is bad for symptoms. And 6-8 hours of it especially bad, but what you can you do? You need sleep!
āYou need sleepā. As @turnitaround says. You sure do with MAV. Lack of sleep really winds it up. I find you do need to go to bed to sleep too. I was once told by my GP not to go to bed but to sleep sitting up on a chair when I had vertigo. Not to lie down at all until it was gone. One night of that was enough. Then when I broke my shoulder with chronic MAV it was fixed by immobilisation (suspended in a sling which was supposedly kept totally immobile for six weeks). So yet again I was told to sleep sitting upright until it was fixed. Best not to go to bed. Best sit upright on a chair! Best for whom? That lasted one long sleepless night too. Maybe itās just me. Iāve yet to master the art of sleeping sitting upright. Helen
Your " failed" med regime is almost identical to mine apart from Gabapentin which i still take along with Effexor and Botox treatmentā¦all 3 of those have saved my sanity!
Glad to hear thereās some hope after so many med trials
I too wish Iād been properly diagnosed during my 20 years of episodic migraines (which I didnāt identify as migraines at the time) and before chronic migraine arrived. The acute attacks were (and still are) brutal but the in-between times were so sweetly normal. Those were the daysā¦
No thatās the trouble with MAV diagnosis. If thereās no headache, nobody, medical or otherwise, picks up on the possibility. Iād never have thought of it because I never had headache. Even the rear head pressure didnāt seem at all like headache to me. Helen