I wish that was all I had going on. I’m not in vestibular rehab because the insurance refused to pay for two types of PT at the same time. I’ve had 43 manual physical therapy sessions so far to try to put the pieces of me back together and then prise them apart after years of endometriosis, a hysterectomy (9/16) and rampant surgical adhesions that glued every organ system and my pelvis to each other from my diaphragm down. I am patiently waiting for Tuesday when my therapist will once again reset my painful dislocated pelvis. Then I’ll stop pretending I don’t need to wear my brace. (I know better.) I have an endocrine disorder that has comorbidities all over the place. I suspect it’s all tied back to some type of genetic defect really early on in fetal development. I look normal, when I hide the brace. I sound normal, unless my ears are stuffy. But I’m far from normal. (My husband seems to think I’m cute and the dog thinks I hung the moon.)
That said, I feel like I won the lottery with this team. I have 25 years as an adult with frequent flyer status in the US private healthcare system. I know the horror stories, the faceless uncaring bureaucracy. I’ve lived it. These people actually care about me and it really shows. I am very, very grateful. I know how lucky I am. I also kept pushing and advocating for myself until I got the team I wanted. Quite possibly God had a lot to do with it.
Also, I just spent 75 minutes of pure bliss in a sensory deprivation chamber. For a spinny little claustrophobe, I thought that might be a disaster. Nope, best birthday present ever. For an hour and 15 minutes the alarm bells in my head were silent for the first time in 6 months. Nothing to listen to but the tinnitus. Nothing to assault my senses or beat me up. I almost wept when I had to leave. But I know where to find it.
Thank you all very much. Having a community that understands means everything.