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Endometriosis

#1

Hi everyone,

I have recently been diagnosed with endometriosis. I am yet to find out what stage I am at etc and the treatment required. However, I do know that there are 4 types of hormone treatment used to treat it.
progestogens
antiprogestogens
the combined oral contraceptive pill
gonadotrophin-releasing hormone (GnRH) analogues

After reading about the possible side effects Iā€™m not keen on taking anything! However, I would imagine I will have to take something to keep it under control :frowning: My question is, has anybody got any experience of any of these meds? I am worried as my MAV is mostly under control now and Iā€™m scared to take anything that will upset the balance! I know Dr Silver says not take an oestrogen based pill because of the risk of stroke.

Any advice people?

Kathy x x

#2

Hi KathyD,

I have had to manage endometriosis for the last 20 years and out of all the therapies tried, I found the best management over the past 6 years with the Mirena IUD. It is progesterone only and has primarily local effects with very little of the hormone absorbed systemically. I have previously tried 10 different birth control pills (at different times :slight_smile: ) and Depo-Provera injections - both BCPs and long acting injectable hormones I fear would have a much greater impact on your MAV.

Now, I have only recently (past 12 months) been dealing with vertigo and just last week MAV was discussed for the first time with me when I saw a new specialist. I am not sure how, if at all, the Mirena IUD is affecting my vertigo episodes; but, as you will find on this forum and as is recommended by many specialists it is important to control you health at all levels to keep your MAV threshold as high as possible. This would lead me to encourage you to get your endometriosis under control (in addition to preventing further reproductive organ damage and to stop the painful cycles associated with Endometriosis) so as not to upset the balance you have achieved with your MAV. Best of luck!

Smiles,
Carie