Hi Scott, and everyone,
I joined this forum in November in full-blown crisis mode, unable to walk, drive, look after myself, etc. with severe disequilibrium. I lost 20 pounds in 1 month trying to cope and had to frantically move out of my building because of the elevator.
Since getting the MAV diagnosis (and with help from this site!) I have been slowly improving. I have seen two great doctors in my new hometown of Boston (Rauch and Whitman) - gotten on the MAV diet, been taking magnesium, following the recommended regular sleep and meals protocol, taking daily walks and trying to get enough water (the latter is not perfect.) And, I have been on low-dose Effexor - 37.5mg, which is a Tim Hain favorite. But having just read through the Survival Guide again, I noticed mention of there being no evidence, aside from anecdotal or placebo, for the efficacy of SSRIs.
Scott, or anyone else, what do you know about that? While I am better, and can drive short distances, I seem to have hit a plateau. And sometimes I go backwards a bit. I can’t really use a computer much, and watching videos or TV is tough. I fear this will be my new normal. I need to work again soon, and not being able to use the computer is obviously a big issue.
I have been counting on Effexor to work. But I wonder if I picked the wrong drug. I am pleased with the anti-anxiety effect and the slight mood elevation. Having had depression and even more so anxiety in my past, it seemed a good choice, putting the future withdrawal issues aside for the moment. I also like that I won’t gain weight like the Nort for instance, because I have a tendency towards hypertension at a BMI over 25. (Plus I like having my 25-year-old shape back!)
I know everyone ends up picking a drug that seems to work for their particular profile. I first tried Topamax and couldn’t tolerate the side effects. Are there any other good anti-anxiety options that don’t make people gain weight and don’t have potential long-term health consequences? And where can I find research on SSRIs not being effective for MAV? Anyone else with anxiety finding a great drug that works for MAV?
Thanks very much! This site has been a godsend.