Hi everyone, so I’ve decided to join this forum to try to get some answers, since I’m at a desperate point! About 8 weeks ago I woke up one morning just feeling off and completely different. This was something that literally happened overnight. I’ve had these symptoms for the past 8 weeks. They are there 24/7:
-A spaced out feeling, sort of like having had a few drinks.
-I don’t feel like myself. Having some “derealization” feelings
-Going in stores or large spaces feels like sensory overload and I start getting more dizzy.
-Feeling disoriented in strange places or places with a lot of visual stimuli
-Poor concentration. Very bad brain fog
-Poor short-term memory
-Very bad light sensitivity
-Jumpy vision, trouble focusing eyes
-Certain loud sounds startle me
-On and off tingling in my feet, legs, arms and hands
-Constant 24/7 tension-type headache with varying pain intensity
-Severe anxiety and panic attacks (which I never had before in my life prior to this)
-Mild depression because of how much my life has changed in the past 2 months
I’m so desperate at this point because this has been life altering to me. I haven’t driven since all this started because I just don’t feel comfortable or 100% in control to get behind the wheel. I’ve had several panic attacks (which I’ve never had before this) since all this started and my anxiety is off the roof. I also feel somewhat depressed. I get very anxious going out to places because everything seems like too much stimuli and it makes me get very dizzy. I’ve gone to an ENT who ran hearing tests, balance tests, and MRI with contrast and it all came back normal, which he said, rules out an inner ear disorder or something more serious like a brain tumor or MS. I went to a neurologist who diagnosed me with intractable migraine and put me on a week long pack of steroids which just made me have horrible side effects. He now wants to put me on a preventative medication. At first I thought it could be Vestibular Neuritis, but all the ENT tests rule that out. My primary doctor also just ran some tests and I came back with high titers for the Epstein Barr Virus which she said could have triggered all this. My questions are, does this sound like MAV? Has anybody else had this happen due to a virus or infection? What would be the best medication for this? Would VRT help? Please help me with any info possible!! I’m so desperate to get better as I’m only 29 and I have a 17 month old to take care of!! Thanks in advance!