Does this condition actually ever get better? I’ve read through the success stories topic here on the forums but the general consensus seems to be that over time, with the help of diet and meds, MAV goes into remission. My own experience over 7 years is that MAV only gets worse. Lifestyle and diet hasn’t helped me in the slightest so I have i can’t rely on that. The majority of success comes from one of several meds too, based on posts here: Amitriptyline, Nortriptyline or topamax are the most common. Already tried those.
I have to admit that reading “topamax gave me my life back” or “diet changed my life” only fills me with dread, knowing those things which worked for others hasn’t helped me. Time by itself certainly doesn’t help either. “Time heals, the body adjusts” - nope. “the diet works wonders” - nope. “Amitriptyline worked in a matter of days” - nope. “keeping hydrated and changing my lifestyle is a huge help” - nope. “nortriptyline and making sure i sleep got me from 24/7 dizzy to 95% well” - nope. Its difficult to read things that are meant to be encouraging but are the opposite, using wotds like “saved my life” and “gave me my life back”. Makes me fear i will never be saved because the things which apparently make most people better did diddly squat for me.
It’s wonderful to hear people say they were bedridden but now their worst days don’t even make them stop what they are doing, no need to go to bed, they just carry on because even worst days aren’t that bad. That is what i aim for, that’s what i desperately hope for. But it’s so disheartening to read that the success for most people seems to be from things which failed to work for me.
I know this is just my defeatiat attitude caused by fear of being stuck like this, and i know many of you have had the same fears which is why I’m posting this topic because i know you’ll understand. I just need to reach out to others with this condition who’ve felt the same.
It’s hard to have faith without evidence, I suppose. That’s why it’s called “faith”.