@flutters No visual snow, not as yet but yes, I can pick up on your ‘photosensitivity’ and have often wondered how many MAVers suffer with photosensitivity. Surprised it doesn’t feature as a User Poll.
Over the last few years I’ve read everything I could find about photosensitivity. There’s not that much out there really. It’s pretty much diagnostic of and synonymous with straight migraine but doesn’t seem to get much mention. Can only assume only the severely affected tend to mention it. Well you can add me to the count. I’ve had it about as severely as it can get I’d imagine. Sunglasses and hats/tennis visors indoors. Living behind closed curtains. Living like a mole and creeping out for exercise once the sun sets like a vampire.
I’m a three years since 24/7 spinning MAVer, (episodic MAV hit at menopause but no headaches Since puberty) so the photosensitivity ‘just’ increases the feeling of nausea and ramps up the dizziness. Very rarely a slight stabbing pain in one or the other eye. Just for a second or two. I do use either drops or a warm compress daily in case Dry Eye is aggravating it.
For me light is both cause and effect. A main trigger. I think it was the daytime mixed light in a restaurant that finally tipped my episodic attacks over into the 24/7 state. Ironic really … I was dining with the Tai Chi group I had joined, err… in order to improve my balance!
Light sensitivity was pretty much the last symptom to appear when I was having acute attacks. Initially it would only occur during acute attacks which were for years well spaced. Certainly since I’ve had 24/7 symptoms it’s there all the time although the severity varies day to day.
Like you I tackle supermarkets with wraparound sunglasses and a brimmed hat but everybody has been so nice. I don’t think I’ve ever had a stare yet alone a comment, the only exception being a dog walking friend of ours who always says “here she comes, with her sunglasses” and who I continue (to try) to like. As I walk with a stick (that’s MAV again) I’m always expecting someone to suggest I get an Assistance Dog but nobody has, yet.
My photosensitivity has improved gradually quite alot. Either the Propranol is helping or Maybe my hormones are reaching some sort of truce with the migraine at last.