How great to find this site.
I have had the spaciness, surreal, drunk type feeling for 13 years now. I wanted to give a brief history and see if anyone thinks MAV may be my problem. I feel almost certain that it is.
I first got “sick” in India. I remember the day as I had smoked some pot (not something I did a lot mind you and haven’t since) and my whole world came crashing down. I had true vertigo, my hearing went very strange and echoie (is there such a word?), my vision was bizarre and all blurred. As a result I completely panicked and had a very bad panic attack. I had never had one before. I put this first episode down to effects from the pot but later remembered that at the time I had a very severe headache and was premenstrual as well.
I have suffered from migraine with aura (that is the visual flashing and bluring) since I was a teenager. I used to get awful headaches with the arua. A couple were so bad I had to get shots in the backside to stop me vomiting and the intense pain. Now I still have an aura (in fact much more frequently sometimes twice a week) but usually without a headache. However I often have a dull headache everyday which I treat with panadol.
Since my first strange “episode” I had maybe two others that involved that true feeling of vertigo. Actually I remember it as like being on a rollarcoaster but I was sitting on a bus. Now I’m just left with this horrible lightheadedness/spaciness day in, day out. It never truely goes away. My eyes often feel tired and like they can’t focus. I can’t stand bright or fluro. lights and wear my sunnies everywhere including inside. I have trouble with motion that is close in my visual field such as a train pulling into a station or a movie screen. I am generally fatigued.
I was initially diagnosed with anxiety disorder and have tried about 10 different anti-depressants to no avail. I am currently on .5 mg of Xanax a day which really doesn’t help a lot. Over the years I have been on a higher dose but there still wasn’t a discernable difference in the way I felt. I always thought there is something else going on here. Why doesn’t the Xanax help if it’s purely anxiety??? Then when I read about MAV about 6 months ago it all fell into place. I felt exatcly what most of you have described. I’m about to have a baby (my 2nd) so I can’t try any preventatives until after I stop feeding her but hope with all my heart that I can finally have some relief from this “disorder” that has so clouded my life for so long.
Any thoughts or comments are greatly appreciated.