Treatment as far as I can see is identical.
Some doctors prescribe Serc and diuretics, but I don’t believe any Cochrane review has found definite proof for their effectiveness, but some people swear by them. Given some people spontaneously improve, its often hard to know if it was the meds or they just got better?
I was already dabbling in the MAV diet and when my latest doctor told me I probably had Secondary Hydrops he said ‘some people find that coffee, cheese and alcohol worsen their symptoms’. Ah … ok then … so erm … the MAV diet is also applicable!
Then you need to consider the meds … Amitriptyline & Verapamil are also used to treat Hydrops … so not much change there!
Tbh this similarity in treatment has made me even more suspicious, on top of the experience I had with the initial oto-neuro dismissing my hearing issues and trauma and telling me it was migraine.
When I asked my current doc how you tell the difference between someone with migraine and secondary hydrops he said ‘inevitably people get the wrong diagnosis because they appear exactly the same’ … which for me is code for ‘I’m not getting into that it’s too political’. Lol
The test for inner ear pressure is ECOG, but I believe we’ve had members who’ve aced that only to be told they have Hydrops later …
I think the new generation of MRI will begin to sort this all out.
This is a very controversial area of the medicine.
I would go with MAV treatment + diuretic to try if you so choose and see how you go … the ultimate way you handle your condition ends up very personal anyway even within the MAV umbrella. Explore it all until you find your personal optimal thing.
Definitely minimise or cut out coffee and alcohol to see if that helps? … (says the guy who had 4 glasses of red wine last night and survived … ooops )