Hi everyone,
First oh my goodness im so sorry this is so long!!! Iām new here and in need of some advice/opinions. I havenāt officially been diagnosed with MAV, but Iām wondering if this is what might be going on with me. Iām a 34 year old female. Before this I was very active, healthy and had a really good diet. I was basically trying to live the healthiest lifestyle as much as possible. Iāve actually always been healthy other than having anxiety/depression, which Iāve suffered with most of my life due to childhood trauma. Iāve also suffered with horrible periods. I donāt have a history or family history of migraines. I just get tension headaches from time to time. Although, I do believe Iāve had 1 migraine before, which happened almost 2 years agoā¦ it was towards the end of probably the most stressful and emotional time of my life. Basically, my life came to a screeching halt overnight 5 months ago. I literally never thought or imagined something this debilitating could happen to me. It was a Wednesday evening and I went for a runā¦ after I stopped I felt dizzy. Itās not a lightheaded feeling, more of like I just got off a mild carnival ride feeling. This has happened to me before, but quickly subsides. It did. However, the next two days (Thursday/Friday) I continued to feel dizzy off and on. I just thought it was because my period was due to start. That Saturday morning I woke up, started my period, had cramps and a pretty nasty one sided headache. I took Motrin, ate and got back into bed. I thought I felt better, so I got up and thatās when my nightmare began. Iāve had these symptoms 24/7 ever since they will wax and wane but are always thereā¦
- Dizzyā¦ non spinning whirly feeling, like I just got off a mild carnival ride or like that dizzy feeling you get when you spin around in a circle really quickly and then stop.
- Push/pull/swaying sensations. Often when Iām walking or sitting on the edge of the couch/bed I feel as if Iām being pushed forward or that Iām going to fall forward. Sometimes I feel like Iām being pulled to the side.
-Rocking sensation. I feel like Iām either rocking or the bed/couch is being moved back and forth.
-Sometimes I feel like the floor is moving up.
-Heavy head/pressure in my face, eyes, throat. Almost like a head rush feeling. Itās more instense if I move my head to quickly, stop moving to quickly, looking up and down or bending down and standing up.
-Tension headaches. Pulsing temples that radiates down to my neck. My ears will feel hot.
-Nausea off and on
-Ok, this symptom is by far the worst, strangest and the hardest for me to describeā¦ my eyes/head feel drunk/fuzzy//buzzed/hazy. I donāt act or walk drunk, but I just mentally feel like it. Although, I do feel like my cognitive function is not good. My eyes just feel so funnyā¦ not blurry really. I just canāt focus on things and the more I move around, the worst it gets. Like I might blackout from all the āalcohol.ā I almost feel like I have intense brain fog, like Iām in a dream like state. Um and thereās lots of pressure in my eyes, like Iām straining to keep them open sometimes.
-Fatigue
-Severe depression and anxiety
-Slight sensitivity to light
Things that make it worse areā¦
-ANY type of stimulation
-Reading, screen time
-Coffee, alcohol
-Too much or too little activity
-Hungry
-Hormones ovulation/menses
-Too much or too little sleep
-Anxiety/depression
-Being overheated
-Long drives/walksā¦ during Iām fine but after Iām so dizzy
-Grocery storesā¦ Costco is the worst!
-Long conversations with peopleā¦ weird?
-Mornings are bad, peaks in afternoon, subsides a bit in the evenings
In the two weeks leading up to this, I felt like I was having panic attacks. But I think it was actually mini episodes of all this. I will say Iāve had a few episodes of this similar dizzinessā¦ once 7 years ago, lasted 2 weeks or so and once 5 years ago when I was pregnant with my son. That lasted 2 weeks or so as well. GP said BPPV and will go away. Iāve also had a couple days here and there that Iāve had these feelings, but only for a day. None of these episodes were debilitating or this extreme and I could still carry about my day and lead a normal life. This was all 5-7 years ago. Never have had a thought about it since.
Tests Iāve had done are several blood tests, hearing tests, basic VNG, MRI with and w/o contrast. Havenāt mentally prepared to get the caloric yet. I did test positive for right sided horizontal BPPV. The bbq roll is not working. My neurologist seems to think I just have BPPV with anxiety. Iāve had anxiety since age 10 and it has never triggered dizziness. I really feel like something else is going onā¦ I mean whatās triggering the BPPV? I also feel like thereās some sort of a hormonal component going on since this all started leading up to and then exploded the day of my period. He is now thinking there is a possibility that it could be MAV.
I donāt have ear pressure/fullness, tinnitus, spinning vertigo, history of migraine or sensitivity to sound. So, maybe itās not MAV? Who knowsā¦ Iām just exploring all my options. I need my life backā¦ Iām a mom and wife, I canāt keep leaving like this. :(
Anywayā¦ Any opinions would be greatly appreciated!!!
Thank you so much,
Alexandra