First oh my goodness im so sorry this is so long!!! I’m new here and in need of some advice/opinions. I haven’t officially been diagnosed with MAV, but I’m wondering if this is what might be going on with me. I’m a 34 year old female. Before this I was very active, healthy and had a really good diet. I was basically trying to live the healthiest lifestyle as much as possible. I’ve actually always been healthy other than having anxiety/depression, which I’ve suffered with most of my life due to childhood trauma. I’ve also suffered with horrible periods. I don’t have a history or family history of migraines. I just get tension headaches from time to time. Although, I do believe I’ve had 1 migraine before, which happened almost 2 years ago… it was towards the end of probably the most stressful and emotional time of my life. Basically, my life came to a screeching halt overnight 5 months ago. I literally never thought or imagined something this debilitating could happen to me. It was a Wednesday evening and I went for a run… after I stopped I felt dizzy. It’s not a lightheaded feeling, more of like I just got off a mild carnival ride feeling. This has happened to me before, but quickly subsides. It did. However, the next two days (Thursday/Friday) I continued to feel dizzy off and on. I just thought it was because my period was due to start. That Saturday morning I woke up, started my period, had cramps and a pretty nasty one sided headache. I took Motrin, ate and got back into bed. I thought I felt better, so I got up and that’s when my nightmare began. I’ve had these symptoms 24/7 ever since they will wax and wane but are always there…
- Dizzy… non spinning whirly feeling, like I just got off a mild carnival ride or like that dizzy feeling you get when you spin around in a circle really quickly and then stop.
- Push/pull/swaying sensations. Often when I’m walking or sitting on the edge of the couch/bed I feel as if I’m being pushed forward or that I’m going to fall forward. Sometimes I feel like I’m being pulled to the side.
-Rocking sensation. I feel like I’m either rocking or the bed/couch is being moved back and forth.
-Sometimes I feel like the floor is moving up.
-Heavy head/pressure in my face, eyes, throat. Almost like a head rush feeling. It’s more instense if I move my head to quickly, stop moving to quickly, looking up and down or bending down and standing up.
-Tension headaches. Pulsing temples that radiates down to my neck. My ears will feel hot.
-Nausea off and on
-Ok, this symptom is by far the worst, strangest and the hardest for me to describe… my eyes/head feel drunk/fuzzy//buzzed/hazy. I don’t act or walk drunk, but I just mentally feel like it. Although, I do feel like my cognitive function is not good. My eyes just feel so funny… not blurry really. I just can’t focus on things and the more I move around, the worst it gets. Like I might blackout from all the “alcohol.” I almost feel like I have intense brain fog, like I’m in a dream like state. Um and there’s lots of pressure in my eyes, like I’m straining to keep them open sometimes.
-Severe depression and anxiety
-Slight sensitivity to light
Things that make it worse are…
-ANY type of stimulation
-Reading, screen time
-Too much or too little activity
-Too much or too little sleep
-Long drives/walks… during I’m fine but after I’m so dizzy
-Grocery stores… Costco is the worst!
-Long conversations with people… weird?
-Mornings are bad, peaks in afternoon, subsides a bit in the evenings
In the two weeks leading up to this, I felt like I was having panic attacks. But I think it was actually mini episodes of all this. I will say I’ve had a few episodes of this similar dizziness… once 7 years ago, lasted 2 weeks or so and once 5 years ago when I was pregnant with my son. That lasted 2 weeks or so as well. GP said BPPV and will go away. I’ve also had a couple days here and there that I’ve had these feelings, but only for a day. None of these episodes were debilitating or this extreme and I could still carry about my day and lead a normal life. This was all 5-7 years ago. Never have had a thought about it since.
Tests I’ve had done are several blood tests, hearing tests, basic VNG, MRI with and w/o contrast. Haven’t mentally prepared to get the caloric yet. I did test positive for right sided horizontal BPPV. The bbq roll is not working. My neurologist seems to think I just have BPPV with anxiety. I’ve had anxiety since age 10 and it has never triggered dizziness. I really feel like something else is going on… I mean what’s triggering the BPPV? I also feel like there’s some sort of a hormonal component going on since this all started leading up to and then exploded the day of my period. He is now thinking there is a possibility that it could be MAV.
I don’t have ear pressure/fullness, tinnitus, spinning vertigo, history of migraine or sensitivity to sound. So, maybe it’s not MAV? Who knows… I’m just exploring all my options. I need my life back… I’m a mom and wife, I can’t keep leaving like this. :(
Anyway… Any opinions would be greatly appreciated!!!
Thank you so much,