Hello everyone my name is Jackie
I am so glad I stumbled across this website and forum.
I have suffered with migraine from the age of thirteen, I am now fifty six, for the past ten years I have been able to control my migraines by knowing my triggers, which are mainly MSG, sweeteners and most additives and preservatives, so basically avoiding processed foods.
March this year I awoke to the bedroom spinning, I crawled to the bathroom, by this time I was sweating profusely and nauseous, I eventually made my way back to bed and slept for hours, only to wake up to a horrendous headache that was migraine level. Episodes of spins and wobbles have carried on ever since. My GP initially suspected Labyrinthitis , but realised as time went by that this was not the case and I was referred to an ENT consultant, who after various hearing and balance tests announced that I have MAV. I have just received results from an MRI scan and that was normal.
I am finding it hard to accept this diagnosis as my migraines usually start with disturbed vision of Zig Zags, which I still get if I stray from my normal routine of food.
I have not taken prescription drugs for at least fifteen years because the adverse affects far outweigh the migraine, and although I had previously controlled my migraines, I still got headaches and was hooked on codeine up until three years ago, I now take paracetamol and Ibruproven they do not really work except that they help to clear the fog.
I have a GP appointment on Monday to discuss the diagnosis, not sure where we are going to go with this one.
I am so confused and frustrated, as previously mentioned thought I had all this under control, only now the migraines have decided to move the goal posts and restrict my life again.
If anybody can help with advice it will be greatly appreciated.