Hello All,
Firstly, hello - i am so happy to have found this forum. i live in ireland and finding it hard to locate the right support forum for my condition.
My story is similiar to so many of you all really, after I had my children i developed migrane and hormones had a greater impact on their duration and severity and my primary sympthons were headache and occasonal lightheadness. Fast forward to June 2016 and I got an awful headache at work where immediately i experienced nausea, dizziness and imbalance - found it hard to walk to the bathroom without veering off to the right. this was the start of an acute attack which lasted for weeks and then months of recovery, during this attack i was unlucky and experienced all symptons ranaing from visual focus issues, dyselquibrium, dizziness, pain in right ear, pain all around right eye, scalp tender and so on RHS, vihsual depth and perception were shocking. thankfully my GP at time got me into the care of a balance therapist and began VRT, no meds - at this time he did a number of test son me using goggles, balance stands etc… and i failed all, he suggested that i had migrane. So i began a long, long journey of VRT and to this day i feel it’s been a huge help to getting me back to a functioning baseline. i finished VRT after one year and waited to see a neurologist.
during this time, i attempted to return to work but found the stimuli just too much even on reduced hours - the laptop, the lighting, the meetings and the pressure of performing like my old self was just too much and so i left work. i have two small kids so my priority is my health and their wellbeing - i want to be well for my family. i’ve had an mri of inner ear (due to pain) and brain, and all clear.
after two visits with my neuro the diagnosis is chronic migrane as i have some sympthons mainly eye, head pain, headaches and sense of imbalance about 90% of my month. We are now looking at meds to break things, i do accupuncture, yoga, take magnesium, B2 and find them good, i also stay away from the C foods and it has helped.
the med i’m about to commence is venflazine, to try break this cycle and give me back better quality of life - i’ll start at 9mg adn slowly work up to 37.5mg. i’m nervous about meds, after 22months to reign this in on my own, it’s a huge step for me.
So here’s my question - becaiuse i had such awful ear pain initially, and have this daily sense of imbalance when walking only, plus aurul fullness, ocassional tinnitus - should i go see an ENT and get ears tested? my neuro said it’s all migrane and when i read teh many posts here, i’m inclined to agee with him and maybe going on the meds will see some improvement and prove the diagnosis. i have a tentative apt for ENT in August - in Ireland, we don’t have any neuro otologists so really relying on getting good neuro and ent who understand causes of vest dysfunction.
any advice greatly welcomed, thanks for taking the time to read this.
Nin