Unfortunately the saga didn’t stop there. It now appears my temporary total withdrawal from caffeine has caused major upheaval. Still seems too much like coincidence to have my first ever major total ‘wipe out’ attack since Propranolol so soon after. First attack in over three years, and coming immediately following my best two weeks since MAV went chronic. I struggled to reach the bathroom at 5.00am on the Monday following the vertigo bout on Saturday, straggled back to bed, had migraine aura, and was wiped out all week. Totally unable to stand or sit up relying on my spine. Either way within minutes rear head pressure would build to bursting point only relieved by lying in bed propped up by pillows without any head movement. This attack, first since meds, was 70% severe than earlier ones. Virtually no symptoms, no pain, nothing, I felt fine, could even use Ipad, eyes too blurry to read book though but as long as my head was totally still and I stared at the opposite wall, I felt fine. So I spent alot of time looking at the wall! I tried to get up every day. By Day Four I could stand just long enough to clean my teeth. With less pressure in head when standing on the Saturday I got up for 8 hours or so. Then, very strangely I woke up on the Sunday morning, seemingly recovered. No symptoms at all. No residual BPPV-like vertigo on bending, nothing. Not only was I fine. I was 100% fine and got on with my day. Didn’t go crazy. Just pottered indoors. Monday morning was a complete repeat of the previous Monday! Back to Square One. Can only assume this is back-to-back attacks. I’ve had those before. Week long attacks followed by couple better days, then repeat. This attack, Day Five again milder again. Two days wipe out then I been up since Wednesday. Cannot do much and I guess is I’ll be several weeks now getting back to baseline.
I can only think, having read a bit on the internet about caffeine withdrawal, the caffeine and the Propranolol both interfere with chemicals in the brain. Withdrawing the caffeine must have set off further changes. I’m rather hoping it’s that as other alternatives really don’t appeal at the moment. Helen