Most that know of me know the long tortuous route I’ve taken through MAV for 15 years and that now, after 18 months on a sufficiently high dose of meds, Propranolol, I’ve improved dramatically. In fact, as @GetBetter said, I’m almost a success story! The last few months I’ve noticed increased rear head tension and defined it as a symptom I’d rather like to mop up. I’ve never seen any of the illustrious top UK MAV experts, just one neuro-oto and one migraine specialist neuro, both just one-offs. Nobody ever told me to restrict caffeine or do any migraine diet. The specialist migraine neuro never even mentioned it in consultation and when I subsequently emailed her specifically said not to bother with either. She said if the Propranolol wasn’t doing enough, She advised adding in another med.
Anyway, despite all the above, a month or so ago I decided to give caffeine restriction and a Migraine Diet a go. At the time, as I don’t experience classic migraine heads with MAV, I was wondering if this pressure was related to the meds. I chose the John Hopkins Diet because it allows two cups of tea daily, and I love my tea. I’ve changed brands of stock cubes, bought herbal teas under sufferance. I really can’t stand decaff tea or teabags. I’m a loose tea freak, always was. Strong British Rail tea for me. Coffee I can live without. So, barring a couple of ‘completely forgots’ and ‘couldn’t resists’, the diet been going OK. Plain, plain, plain and boring and I cannot live without Cheddar cheese. That’s not negotiable. Again fell by the wayside with my home-made Chinese one week-end. Was it the vinegar or the pineapple? Caused bit of a relapse. Out to relatives, extra cuppa brought the tightness back next day.
So unfortunately it’s beginning to seem these restrictions are working. Seems to reduce the rear head pressure or even eliminate it (and probably helped with the ear pressure though I think the meds had already almost sorted that before). and I most reluctantly have to admit I think I’m better without. Sob! Sob! And it doesn’t take much ‘banned’ ingredients to wind it up. Yesterday I had a visit for a friend who’s very recently fallen in love with ‘Bakeoff’ on T`V and developed a huge crush on Paul Hollywood and has taken up baking with a passion and wanted my opinion of her Chelsea buns - packed with dried fruit and lemon. Two specimen halves and the obligatory cuppa over the daily quota, and I’m paying for it today it seems. All a bit of a blow really. It’s a way off yet, but Christmas. I haven’t eaten chocolate since I was thirteen’ish, don’t eat nuts and don’t drink. No MSG, Pringles are out. No dried fruit. Well, that’s Christmas, Rich Fruit Cake, Christmas Pudding, and Mincemeat. I’ve a sister-in-law who makes mincemeat to die for. All off limits. I was really willing these restrictions not to work. I really was.
To misquote the Bob Gedorf song , apart from the carols, ‘Will I know it’s Christmas time at all?’. Helen