Iām in the bell curve.
Hi Emily,
No one size fits all.Each one is different. Many people get an handle on this eventually.
You did nail the description.
I had that hearing loss also but it went away after a day and some prednisone. I think most of the MAV is not due to anxiety, I think itās biological. You just need to find a good neurologist or neuro-otologist. Iāve been on a low dose of meds for almost a year and I feel pretty good. Iād say 95% normal. Donāt stop looking for a good one. It can be treated.
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Hi Sherry
Which meds do you use?
Iām on 30 mg of desipramine at dinner time. I took Klonopin a couple of time but Iām not sure it did much. Iāve had a long history, with āepisodesā that would occur years apart. The last couple of years itās kind of flared up but I found a great doctor who was very optimistic and said it would most likely go away in a couple of years. Kind of the same descriptions in the other post!
thatās a first for me. Never heard of this drug before. Looks like it is working for you. good luck. Sounds very close to gabapentin.
do you also do the diet and any other lifestyle changes ?
No, not really. I try to stay away from Chinese food because of the msg, but thatās really about it.
My doctor was going to give me amitryptaline but I had tried it for bladder issues and it made me feel so stoned that I opted for this one because it was a milder version. I have had some constipation and weight gain but no other bad side effects.
You are right . i was wrong. Desipramine is a tricyclic antidepressant and no where close to gabapentin !
Iām not sure what gabapentin is. Iāve heard if it but that wasnāt one of the choices my doctor gave me.
Itās also called Neurontin. Itās a āneuronal stabilizing agent,ā most commonly used to treat seizures. I believe itās also given for some types of nerve pain.
I once had incredible hearing, and now I have mild high frequency loss in both ears. Not sure if this is vestibular problems or age (over 50). My ENT dismissed it, didnāt believe it tied into other symptoms. (I only know that between the chronic hissing tinnitus in my left ear and the recurrent pulsatile tinnitus in my right ear, I couldnāt hear the test tones! lol)
Most of us here have mild high frequency loss. All tinnitus is hearing loss, so everyone with tinnitus has some loss.
I am sorry and I feel for you. Iāve seen two primary care, three ENTs (two of them neurotologists, no less) and one neuro. The neuro was bored, looked at me for two minutes, did a few physical tests, and proclaimed it was a āvestibular disorder,ā and to see an ENT. Next!
I had VNG and ECOG, which were normal. An MRI was normal. Mild hearing loss. One neurotologist flat out dismissed migraine because I donāt have the aura or screaming headaches of classic migraine. They said it canāt be Meniereās because I donāt have attacks. (My symptoms are chronic.) They all ignored the 24/7 tinnitus and pulsatile tinnitus in right ear, ongoing imbalance, and brain fog. No one ever mentioned possible virus/bacterial infection, so was never treated for this after my initial attack of vertigo. (Even though Iād been swimming a lot during that time.)
Basically, they all said thereās nothing wrong.The last neurotologist asked if I were ādetail orientedā (translation: OCD, type A, neurotic, anxious), and suggested Paxil. Sigh. He threw me a small bone: maybe Iād had vesibular neuritis. But thereās nothing really wrong. I marvel that anyone has found a doctor to take them seriously. I expected more from specialists. Geographical location makes a difference, as access to real pros may be limited. You are not alone, though. (As shown by this board and others like it.) My sympathies. I feel like Iām living in the Dark Ages concerning the inner ear and all the different fluids, signals, and pathways of the brain are concerned.
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Paxil can also work for Vestibular migraine. If VNG and ECoG are normal then treat it like VM and VM has its own set of drugs as can be seen from flowchart at the bottom of the below page.
edit: replied to wrong member
Yes, youāre right.
Colorado
p.s. Thanks for the link, too. I have had a lot of āsinusā headaches. ha Scary when doctors go only by stereotypes, though.