What does doctor S say about beer?
Hi would you be able to tell me what you did for VRT? Iād like to see if I can find something similar here in Canada 
Hi,
itās been six weeks since I saw dr. Surenthiran. was pregablin 25mgs increasing dose and all diet restrictions. Have been doing much betterā¦not as dizzy and have been feeling more like myself. However the last two days my brain feels foggy again and dizziness is creeping back again. Really get low when this happens even though I know itās not gonna be smooth sailingā¦ Just hope it settles again over the next few days. have a really important presentation at work this Friday so need to be OK for that! Find it hard to stay positive, donāt like annoying family about it all the time as they in Ireland and just worry.
Anyway so fingers crossed. Hope you are all well
I found this post after seeing a reference to it in another old discussion thread. WOW, this is great information. If @Jem is still on these forums, THANK YOU for posting it. Dr. S sounds fantastic and the analogies really help explain VM and how the brain gets āoverloadedā in someone who has VM. I hope he was able to help you!
Hi Jem, I just came across your post and have been to see Dr S. I have the same diagnosis. Just wondering how you are getting on these days? Just looking for some hope really! X
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Try to find out if there are any neuro otologists near you, or any doctors with an interest in MAV or VM and ask your GP to refer you. There are headache clinics out there too. I think starting the diet is a good thing to do, at least psychologically you are being proactive in managing the condition. There are lots of migraine diets out there. I used to do the Stecve Bulchloz one from Heal your Headache (book) but the six Cās diet which Dr. S recommends is much easier . I do think giving up dark alcohols, caffeine and keeping to a regular sleep pattern do make a big difference.
Both Dr S and a headache specialist I saw said that the main thing was to get started on a med, take your pick and if it helps with a co morbid condition go with that one (e.g. if you have high blood pressure then propanalol can also help with that). I donāt know what age or sex you are but for me the peri menopause (mid fifties) has lobbed a big bomb into my life in terms of this condition.
I think part of the skill of the specialist is knowing the dosage ot the meds you need to take and for how long you need to take the meds.
A few years back, I took Amitriptyline (after a chat with my GP) and it had started to help but my GP said that as my headaches were subsiding I could come off it . I was only taking 30mg for a few months, so it probably was helping but I came off it way too soon. A specialist would have known to try maybe upping it a bit and certainly to advise me to keep taking it for a least a year or so.
Good luck. There is so much information on here and links to great artcicles.
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Away from London and the South East they are pretty scarce. Goodness knows why. Iām sure there would be plenty of demand. The system @jojo65 has in the North East seems would be a good model for others to copy and must surely be effective use of resources whereby there exists a Go Between Nurse who has access to the consultant between appointments for āmanagement assistance. Some regions do run so called āHeadache Clinicā but often this is just a posh name for āDiagnostic Centresā. Far too many sent people on their way with consultants assuming GPs fully understand migraine prevention when that is more often than not simply not the case. That was how I got caught spending fifteen months on too low a dose of Propranolol. My GP was under the impression you needed to take as little as possible. When it didnāt control the symptoms, she just kept telling me āit wonāt stop it completely. What you have is As Good As It Getsā or āYou are a complicated case and I donāt understand anything about it. They say itās āmigraineā. Umā. Which is a parallel to your own Amitriptyline experience. There are obviously gaps in the system that need fixing before too many more people fall down the cracks.
So very true AND UK specialists do have access to some drugs ie Fluarazine, GPs donāt and can also prescribe over recommended dosage if appropriate. Helen
Hi Jem. I saw Dr Surenthiran. He said pretty much the exact same to me. May I ask how you have been since (I realise 7 years is a long time!). Did you follow up with him? Which medication do you use?
Thank you!