Thatâs interesting, I didnât realise a perforation could be fixed. I shall make some enquiries.
@Onandon03 - Helen , yes MVBD seems to summarise what I was experiencing. VBD would be easier to explain probably as most of my familyâs reaction to MVBD was "but you donât get headaches! " I did get headaches that also affected my stomach so I think these were probably more of a migraine than headache. Jan
Actually some perforations fix themselves? Has it shrunk over time? If Dr. S was not worried about it then thatâs a good sign. You can have them grafted if they donât do it spontaneously. I donât believe thatâs terribly invasive - I know someone whoâs had it done successfully.
Thanks jan good to know it takes time actually dr s said pitz is my next med if this fails. Hopefully it doesnât I had similar symptoms to you when I was younger but now itâs much much worse and chronic no idea why ! Think ur right itâs more interesting if your not going through it but @Onandon03 posted a link to the Walton centre which links all my symptoms especially the detached feeling so This has made me feel heaps better
Ahhh thats me to a tee AmyâŚsome days i feel like my head , ears & nose will burst!!! With a pulsating pounding sensation. Feel like my face will split open when i bend over
Jo x
Yup thatâs pretty accurate my brother gets this and he gets normal migraine so it must be a thing ! My gp mentioned oxygen treatment think heâll try anything to stop seeing me x
The only comment Dr S made was,âhow did you do that? It looks as if you have pushed something quite hard in your earâ which of course I hadnât. I have no idea how I âdid itâ lol, but I know I have had it for ages - at least 20 years. I also thought they grew over,but it doesnât seem to have happened. @Amylouise. @ander454
Dr S also said to me that the pressure was the migraine - interesting stuff. @Amylouise good that you have that info from @Onandon03 - it must have re-assured you a lot. That is what is so great about this community - sharing information which is so helpful. X
Amy
When i first took ill i had to have several oxygen treatments at my gp surgery my head hurt so muchâŚin fact they initialy thought i had a cluster headache/ migraine overlap syndromeâŚbut then the dizzies came with all the other neurological stuff and they diagnosed chronic vestibular migraine
Jo x
Iâve a friend whose had perforated eardrum for nearly 60 years. She says it made her totally deaf in that ear so must be bad. Hasnt grown over. Sheâs always fanatical about never getting any water in her ear. Wears ear plugs and hat in the shower. She is a migraineur, started post partum but no MAV and certainly no balance problems until very recently but sheâs 82 now and in general poor health with COPD. I wasnât aware they repaired or that they could be fixed by an operation. Donât think she would be either. Amazing. Helen
Yes definitely amazing if it can be fixed. I am always surprised that my hearing is ok in my left ear with the perforation, especially as when I was a toddler I had a mastoid operation that side because of an ear infection. One of my GPS atanother practice when I lived in Berkshire told me I should wear ear plugs when I have a shower too but I struggle to get them in properly and donât wear them when I go swimming either. I have just bought myself a new pair that look a bit like the migrainx ones for swimming but havenât tried them yet. Too vain to wear a swim hat as I look so odd in them - I donât know why I should worry about that at my age! Jan
Vanity has no age limits. Only advantage of wearing specs I find is without them on in the bathroom I look so much younger cos I canât see the wrinkles. Same would apply in a swimming outfit.
Funny you mention that since upping my dose the thing that has gone is my 247 shimmering water in the distance ( aura ) I hope this is a sign this med is working
Well its hard to decide which one is the most debilitatingâŚboth!!! The dizzy spaced out disconnected symptoms ruin our quality of life as we arnt able to enjoy socialising or work or travelâŚin fact enjoy nothing. Then the headache comesâŚstill debilitating and not even able to lie down and sleep with it due to the pressure, pounding, pulsating feeling sickâŚi wouldnt like to choose some daysâŚits the pits Amy
Jo x
Gotta agree this is very tru itâs like the best of both evils . The spaced out disconnected feeling is bloody hard to describe I tried saying to my gp it feels like walking even in my house itâs like my eyes donât keep up with my brai . That for me is the most debilitating symptoms . I attempted the cinema on sat first time in 10months even watching the tv made me feel I was on a boat ! X
Amy, I agree the spaced-out/dizzy/disconnected feeling is the worst. I use a peppermint-oil roll-on on my forehead and temples, and also a camphor/menthol cream called Chinagel. I started using these to help with headache pain, but I find it also quite soothing for the dizziness/spacy head. The effect is only temporary but I find my head clearer and more present after applying, and use both of these many times a day. If peppermint oil is something you can tolerate, might be worth a try. Hoping you are having a good day.
Yeah spaced-out-disconnected feeling is bad. Eyes not keeping up with the brain is spot on with me as well, although Iâm much better than I used to be.
These sensations are why I thought it was a mental disorder in the early days, I just kept telling everyone that I was in an altered state of consciousness. Hard for anyone to understand unless they go through it.
Yes thatâs exactly it you have no idea how reassuring it is to hear it isnât just me . I find it very hard to explain itâs like I can see but canât take it in like my head is gonna float away very hard to describe super happy to hear this has improved maybe thereâs hope for me yet
Thanks so much @lsengara my boyfriend said a colleague of his did this on her feet and it helped migraine I have some so il def give it a go . My gp upped my dose yesterday so fingers crossed I get somewhere hope ur doing ok