Good afternoon everyone
So thought I’d update you all after my appointment with dr s surentherin . I recorded the whole thing so I can refer back to it when lack of hope gets the better of me . He made a lot of very key points to me . Which I hope some will find helpful.
He firstly said I am to come off dosulepin and eventually proprananol aswell. He said these meds are not the best for treating migraine variant balance disorder his words not mine . However I know so many here have had success with both of these meds but I have to listen to his advice as he does seem to be the best doctor for this condition.
Interestingly enough he said proprananol works on a different part of the brain that is not helpful for this type of migraine but very helpful for typical migraine . I found that pretty interesting .
He told me I am to start pizotifen from tonight going up each week by 0.5mg. He did say this will increase my appetite so I have to be careful and he also said to avoid processed carbs.
He explained that the 247 symptoms are background and the major attacks are keeping the background noise going and they would take time to settle. He also told me not to do too much on my good days this I do find very hard as it’s hard to know your limit .
He said every single symptom I mentioned was totally normal for this illness and he’s heard it 100 times before . My most worrying was the spaced out disconnected feeling and visual snow/shimmering for those wondering he said these will go BUT it may take a long time . He told me he’s not surprised I am not getting relief on the medication I’m on. He said nortryplin act differently to dosulepin even though both are trycilic anti depressants .
He also said a medication can take up to 4/6 weeks to feel any effects so I should not assume it isn’t working before then. He also said not to write off a medication before hitting the right dose. Both of these facts put my mind at rest . He said ALOT of people need a combination of 2 medications to calm the brain down and it’s not uncommon that it can take a while to find the right dose and combo of meds.
I told him the trouble I have had with my gps and he said I should put my foot down more and that gps know hardly anything about this condition so I should be stern with them. He said the diet was important so I am going to be more strict . He said my recovery is going to take a long time and I have to be patient . He’s asked to see me again in 3/4 months but said we can try to move the appointment nearer.
Overall I feel better for going today , I think the main thing I wanted from this was reassurance and a different plan of action which I got . I will keep everyone updated on how the pitz works but I do hope some found this helpful .