Does anyone want to create a Facebook Private or public group page? I just see it being easier as if someone posts we could get notifications and stay in a lot easier touch. It’s just difficult because sometimes I feel like I’m on an island with this diagnosis. It’s easier to have people that can relate to your every weird symptom. Just a thought, let me know if your interested, pass the info around, and I’ll create it if enough people would like this idea! 
There are a few really great facebook groups already that you could join Vestibular Hope, Vestibular Migraine Professional, Vestibular Migraine Community, Vestibular Migraine Positive Living. They have all been amazing for me!!
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Awesome! Thanks so much!
The problem with FB for some is that it lacks privacy and anonimity.
FB can let everyone know you are a member of that group. I just don’t trust them for health related discussions.