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Anyone recently started Duloxetine


Thats why I was approved Botox Helen because I was suffering Chromic Daily Headache with neck pain. I was never just a “dizzy” i always had a headache of some shape or form.
Jo xx


My insurance wont cover botox, does it work for MAV


Ive only as yet had 1 treatment in May which totaly eliminated my headaches and neck pain but i was told by my neurologist she would be be doing another round in August then review me again in November…as yet i still have dizziness but she says its " early days".


That’s frustrating. Hv they explained why. Not because they think it’s for cosmetic reason presumably. Maybe because it’s not an approved migraine preventative treatment yet maybe.


It’ll be interesting to see if it does work for all the MAV symptoms. That wd make it popular for general use then I suppose. Wonder if eventually it might take over from pills for migraine prevention along with those new injectable drugs. For the future.


You will be 1st to.know if Botox works for all the MAV symptoms i am still battling with daily Helen…then i will shout it from the roof tops!!!
:smiley: i will be doing my VRT later today…in the form of Tesco​:grin:
Jo x


Oh, No, not from the roof tops, JoJo, you might just get Vertigo.

Good Luck with the VRT. Wear yr sunglases in store, look left to right and vice versa as little as poss and don’t buy anything off the top shelf. Or the bottom shelf. I’ll cross my fingers you’ll be OK.


Well, 24th has passed. How did it go or was it put forward because you’ve since had Botox round Two meanwhile. Helen


Morning Helen
I had round 2 of Botox 3rd August and will have more 12 weeks from that date.
First 2 weeks post botox were just awful…worse headache, sore at injection site( couldnt comb my hair) neck pain and face pain and still have slight drooping of eyelids. 3 weeks on…although i still have MAV symptoms my headache has gone and neck stiffness also. Its tremendous for the pain element of MAV…BUT yesterday i was able to go to a get together at my sisters with my partner and all the family for a meal and had a few gins!!! Yay!!! AND im going out for lunch today and a couple of drinks​:grinning::grinning: Now i dont know if im having just a couple of good days or the fact im off work on annual leave and rested or the Botox is working…or all 3!!! Im still dizzy and off balance dont get me wrong but not severe enough to keep me indoors…im not changing shoes tho!!! That would be a stretch too far.
Hope your well
Jo xx


So glad to hear Botox is giving you some normal life back. Don’t knock it. Enjoy it whilst it lasts. If you relapse tomorrow just remember it’s probably the gin, not the MAV! Though of course that might just be ‘confirmation bias’. Guess your young neurologist is relying on your Botox to eventually pull you through as she hasn’t found any new preventatives to torment your system with yet. Helen


Hi , just reading your thread and this is literally how mine started I had painful headaches everyday for ages, then woke up one morning dizzy and it never really left. I’m on prop 160 mg a day and find it eases my dizziness a lot. At first it made me so tired and abit more dizzy which made me nervous but I’m now on about week 7 and the increases get easier to take. Do you still have daily symptoms? Any problems with your ears or eyes?. X


Yes I absolutely stll have daily symptoms. Not pain related much now because the Botox has worked wonders for that but i certainly still have eye , ear and sinus issues. My coordination is terrible just from crossing a road makes me dizzier and disorientated and some days when symptoms are severe i feel like my ears and nose are going to burst open with pressure. My eyes and brain are definitely not working together as they should. I 100% know the 6 months of chronic headache is the cause of my MAV onset…that and my history of migraine and menopause. I still feel my neuro will add another med at some point if i dont improve as she would like. But ive had a good few days and been able to get out and about of late. Cant tell you how glad i am to get rid of the 24/7 headache…now just the dizzy, disorintated, disconnected symptoms to get under control…which is gonna be the hardest it seems.
Jo x


Hi, I’m glad the Botox is helping you to some degree and I know you will carry on getting better in time. When you woke up with dizziness at first did it ever subside at first or has it always been there to some degree since. What ear and eye symptoms do you still suffer with? I also found my ears and eye problems didn’t come on at first like the dizziness did, did you find this aswell? Have you also ever suffered with vertigo?
It’s definitely so nice to get out and about and I bet with you same as me I can’t wait for this to not be my first thought when I wake up and go to sleep.


My headaches began 17th Nov 2014 then May 6th 2015 i got up to go to work but was so dizzy i could hardly walk i felt ill. My GP sent me straight to hospital with a suspected stroke…i was referred to a headache specialist and ENT specialist. I was seeing them both at the same time and BOTH diagnosed MAV given my history of migraine and previous 6 months of constant headache. All my ear tests were normal as was my MRI scan
Yes…im dizzy every day to different degrees its never really left since may 2015. I had an isolated vertigo attack about 20 years ago which was short lived and went away by its self.
I take Gabapentin as i suffer intermittent right ear pain/ pressure. I suffer blurred vision and when watching tv my eyes cant keep up with the motion. When i walk i feel like im being pulled to the ground( especially after travelling on a bus then getting off it). I still have a lot going on but ive had a taste of normality this last 3 days…to a degree
Jo x


Oh, how true, and how frustrating …

Please can someone give this woman a medal. Helen




Ha ha…thanks Erik i will wear it with pride!!! Have you got a couple of hundred more the rest of our lovely friends on here too!!! Especially the ones worse off than me😁
Jo xx