Hi DJ, well you see it’s been a wacky ride for me,
I’ve never had true spinning vertigo,
Mine is like mal de debarquement rocking.
Up until a year ago I didn’t have obvious visual aura, only (mood changes) ect
Everything just looked as if it was rocking, or rotating slowly
Ent said normal with mdds,
I had double vision, greyish colour changes
Optometrist said, just an over 40 thing,
I had very bad constipation type (IBS),and felt there could be some correlation ,
if the bowel wasn’t working right you could be vitamin deficient and that some people with celiac or gluten intolerant could have the same symptoms
so I went gluten free and had my blood check for b12 deficiency
Which was just below normal, but doc said nothing to worry about,
I bought the b12 from a chemist and put it down on his desk and insisted he give it to me,
I believe the gluten free diet helped me, and the b12 just topped it off,
By the way there is very strong evidence that a gluten free diet helps many epileptics live a seizure free life,
Since epileptics have the neuron going crazy I figured it couldn’t hurt.
With in 2 months on the gluten free diet and injections every 4-weeks, I whent into remssion,just disappeared one morning,
all blood test for celiac were negative,
So since I was feeling better I gave up the gluten free diet and stopped having b12 injections and started taking multi vits and sublingual b12, My Dr who originally wanted to help me find my cure had moved away, so I stopped have b12 injections, ect
My cousin came to stay for a week,
we sat up late every night drinking red wine, I was exhausted, and bang! The rocking came back.
End of last year the visual aura became very prominent.
I’d never understood what it was, explained it to a mal de debarquement forum leader she is an RN, she said oh jen that might be mav, what your seeing is aura,
So I saw a neuro, and he confirmed this.
So at 1st < I believed I had celiac . not so
not long after visaul aura got wrse diagnosed mav,
I still find taking b12 and other vits like magnesium I have less migrianes.
these vitamins have to be high doses Dj.
allso a lady from the mal de debarquement forum , went to her neuro , he did a b12 check and found she was very low in b12 and he said omg and gave her a shot in his office with in 24 hours hshe had stopped rocking, and went into remission, so yes low b12 can cause these symptoms .
I hope Ive answerd your questions, sorry for going on,
all the best jen.