I have needed three months of Nortriptyline about every 10 - 14 months for the last 6 years. I always fall apart in the hot summer months but I am excited to see if I do better this next summer. I always blamed the problems on the heat and menopausal changes) but I was also eating strawberries, lots of tomatoes (my husband grows them), potatoes, spinach and not drinking enough water (I thought I was but now know I need about 70 ounces a day). I also now stay away from brewed decaf most of the time. It can have too much caffeine for me so I only drink Mount Hagen Instant Organic decaffeinated coffee. It is CO2 processed and I have no problems with it. Exercise in the summer is also an issue so I may have to reduce that. I hope it is just the histamine loaded food and adding more water… We’ll see. Personal research is certainly the name of the game for us. Now that I have eliminated or greatly reduced histamine foods, I only take Allegra (which reduces my ear fullness) every 10 to 12 days. I was taking it every 4 days so this is definitely an improvement that is measurable. (vertigotalesandtastes.blogspot.com)
May I ask how you’ve controlled your symptoms and handled this for so long? I’m going on my 11th year, and I’m about to be 40. I worry all the time what this will look like as I get older.
I had my first serious episode (emergency room by ambulance) 6 and 1/2 years ago and I am finally in control. It takes around 3 years to wrap your head around all the changes you need to make. I have described everything at my blog if you have time. I am on the migraine diet (mainly the 6 C’s), low histamine, trigger awareness and I take Nortriptyline every 10-14 months (3 month course) as needed. I am having a challenge from the series of storms that have been coming to California but no serious fall-outs yet. There are many good topics at the mvertigo site if you scroll through. (vertigotalesandtastes.blogspot.com)
Margaret, I have put my story down in the category ‘information vault’ - ‘alternative treatments’, as it’s quite long and I seem to be repeating myself. I have chosen to pursue a more natural route for many reasons - one being that I tend to react quite strangely to even ‘mild’ drugs across the board (not related to my MAv). I TRY to work on prevention being better than cure, wherever possible. Certainly getting older throws all kinds of things at one …so better to just try and maintain a reasonably healthy lifestyle, as it seems that every stupid little thing you did when you were young comes back to haunt you later!!! May be too little too late for me, but ya gotta start some time If you’ve made it through 11 years already - you can do it!
Thank you mazzy, that is a great read as I am all for homeopathic treatments, as is my new neurologist. She recommended that I take whatever I can find to help me so I will go armed with your list tomorrow!!!
I am lucky that nortriptyline keeps me on my feet quite literally as without it I need a walking stick to keep me upright. It is like a miracle drug! I would rather not have to rely on it but for now it is helping big time.
Hopefully if I add in your recommendations I will be able to walk normally without it, that would be good.
Good luck! I hope something helps for you!
Thank you! I love new places to find information and help! I’ll check it out! Thx!!