Hi all. I was diagnosed in March this year and embarked on trying to find a treatment that worked for me. After a few false starts (Topomax and Effexor) I started on Ami and titrated up to 75mg fairly quickly and easily. I’ve been on that dose for a few months and I’m at about 90% which is amazing. I still have some visual vertigo but nothing compared to the hell I was in for months. I feel mostly normal, most of the time (hurrah!)
The problem is, I’ve gained over 10kgs (22 pounds) and I only weighed 50kgs (110 pounds) to start with. So I’ve gained 20% of my body weight and the scales are still going up. I’m doing fairly intensive exercise 5 days a week and I’m attempting to restrict my calories, but the Ami has increased my appetite so much and it gives me intense carb and sugar cravings. My hunger is never sated, even after a big meal. I don’t want to stop taking the Ami as it’s pretty much given me my life back, but I honestly can’t handle gaining more weight than I already have and the appetite issue is a big one.
My doctor (a general practitioner) has suggested that I could try reducing the Ami dose, to see if that helps reduce the appetite/weight side effects or reduce the Ami AND add another drug to hopefully counteract the appetite increase/weight gain. I’m wondering if anyone combines Ami with an SSRI or SSNI successfully. I can’t take Effexor or Topomax (I had unmanageable side effects when I tried them) but may be able to tolerate others.
I’m on a waiting list to see a new Neurologist but it’s a few months down the track at this point. My GP knows a bit about treating VM but she’s obviously not an expert. I was hoping to hear people’s experiences combining other meds with Ami or any other suggestions that might help with this issue.