Hello again to all those on the forum. I have not posted in a while, but I read the forum every night. I like to keep up with those I have come to “know” and care about.
I have only had MAV since Dec. 2011, and I am not an expert on the subject. I don’t feel qualified to give advice to others (like Kelley, who really knows what she is talking about). That is why I have not posted to other’s problems or questions. But, I have learned a lot and I know that it is different for each person. Each drug can affect us in different ways. When I was just diagnosed and so scared, crying, fearful, I wanted to hear ANYTHING from anyone, that was taking the same drug I was, that was having good result so I could copy them. I got the idea of Paxil from Scott and suggested it to Dr. Hain. He said “sure, take it”, and I started on Paxil at 2.5mg just like Scott. I figured if he was doing it, it must be right. Luckily, it DOES work for me and I am now up to 7.5mg. (I’m REALLY med sensitive) I got the Nori from Dr. Hain and he said to start very low for a month. 2.5mg. I am now up to 10mg. I started the whole thing in Dec on verapamil and am still at 180 mg and will stay there. It got rid of headache and hard spinning nausea vertigo.
I feel about 95% and have felt this way for over 2 weeks. Maybe longer. I do everything I used to do. I drive, I play golf again, I cook dinners and clean the house, I walk the doggies. Back to normal. I do get tired, but not too much out of the ordinary, and I do get some visual problems in Walmart!!! haha!, but I can do it and do it by myself. Used to be my hubby had to be with me and I even did the electric cart a few times, but no more.
I feel like a success story. I can tell you that when this began, I was sure I would NEVER find my way out, I would NEVER find a drug, I would NEVER be able to get ON a drug without side effects that were intolerable, I would NEVER stop crying my eyes out, I would NEVER be Meredith again or be happy again. All wrong!!! I kept trying, I stayed with my drugs and started so low and went so slow. That was the key, for me. Start low and go slow, real slow. I am happy again, my hubby is happy again.
I want to thank all those on this forum for helping me. I could not have achieved “success” without you, and I mean ALL of you that wrote to me, encouraged me and helped me. Finding this forum saved me. It truly saved me. Thank you, Scott, my dear, for this place to go, for all of us that have this horrible illness. I will never lose touch with all of you on this forum. I will be praying for all of you that are suffering, and hoping that you can find the answer.
I sold my house here on a lake and bought a smaller one, one story, for me and dear hubby of 46 years. We are in the process of packing up right now. Life looks promising again to me and to my family. Thank you to all!!!