First off, Iāve been recently diagnosed with chronic migraines with MAV by Dr. Cherchi after wondering what was going on with me for the past few months and this forum has been a lifesaver, so thank you all so much!
Iām currently on Hain and Cherchiās migraine diet (though Iām not sure if itās helping or not), 100mg generic topamax, and generic zofran for the nausea as needed, though Iām still very symptomatic so Iām hoping to go up in dosage soon or something. Iām very pleased Iām able to tolerate the topamax quite well except when I titrate up, as I know it can be a hard medication to tolerate. Still, on āgoodā days my baseline is still not very good and my bad days are still very bad (though a lot better than they were without medication) and occur 35-50% of the time.
Iāve been trying to do a lot of research on this question online but itās been very confusing, so I thought I would asking the mvertigo community. Iāve been on generic flonase for years due to a dust/dust mite allergy but have been off and on it the past month or so since Iāve been worried that it may contribute as a migraine trigger. When Iām off it, it makes me even more miserable as then Iām sneezing and blowing my nose all the time so it would be nice to be on an allergy medication that I know I can tolerate. The reason I initially became concerned is because I heard Scott mention on here that it can cause a chronic migrainous state (although Iām not sure which paper this was based off) but I was able to find this paper myself which associated it with worsening and triggering migraines too so maybe this is the same one or just further support:
onlinelibrary.wiley.com/doi/10.1 ā¦ 724.x/full
That being said, itās hard for me to tell right now what is a trigger since Iām so symptomatic and Iām migrainous all the time and I feel so crappy. Iād like to stay on the allergy medication if itās not a problem, but if there is an allergy medication I can be on instead that will work just as well or pretty close and definitely does not worsen/trigger migraines, I would definitely be willing to switch! Any comments from the community? Iām aware that general decongestants are out, and likely anything OTC might not be strong enough since Iām already on something prescription but Iām open to any and all suggestions.
Thank you so much!