At the time of my first MAV episode, around 3 years ago, I suffered from an enormous panic attack which saw me end up in the ER. Since that first episode, my symptoms of dizziness, head pressure, and tinnitus have been 24/7.
Additionally, however, I have been highly agoraphobic. I dread making any sort of appointment, date, or commitment for fear that while there my symptoms will escalate (as they do at some point every day) and I will be caught in a situation where I am unable to make a quick getaway so that I can tend to my symptoms and thus avoid an embarrassing panic attack (several of which have occurred when I go through with commitments). Consequently, I rarely commit and follow through on anything, in turn making the cycle of anticipatory anxiety worse.
I’m aware of the kind of progressive exposure that is required to treat agoraphobia, however because of the MAV, I am unable to stick to a consistent schedule of going out and attempting to live life without drastically worsening my symptoms. My hope is that once I find a preventative medication that makes a sufficient impact on the migraines and dizziness, I will finally be able to commit to an agoraphobia treatment plan.
I suppose I’m not really looking for advice or anything here, but just wanted to share my experience and hear from anyone else who has had similar mental health problems directly as a result of their MAV, PPPD, Secondary Hydrops, etc.
All the best, D