Before? Sadly not. But I had no perceptible impairment prior. My impairment now is noticeable (but the tinnitus even more so!) It's clear to me that tinnitus is due to narrowing of channel due to the hydrops causing the hairs to become trapped by the ceiling. At that point they start to ring. A hiss suggests a spectrum being involved.
I've read this type of tinnitus can be reversible but you need to address the hydrops. Lift the ceiling and tinnitus goes? (Well anatomically it's dropping the floor) Some people get wild fluctuations in tinnitus. Mine is persistent but usually changes slowly. I sometimes get escalations after some types of meal. That's huge evidence for Hydrops being involved.
Yes and ENT surgeons are often too bullish and keen. I suspect the outcome of patching is MUCH more uncertain once Hydrops has really taken hold. Also have you seen the post op restrictions? I wonder if their effects alone are significant. It's worth incorporating those into your life without surgery to see if that can help on its own?
What we really need is a way of reducing the endolymph medically and then allowing the healing to occur automatically.
THIS for me is the reason we have the 6Cs diet. It's to reduce Potassium intake and therefore limit Endolymph production/pressure. I believe it helps!
I was sceptical for a long time but having dropped the meds has meant I can feel much more subtle changes in my symptoms. I've noticed an increase in symptoms after eating a chocolate brownie. Full of dairy, nuts and chocolate they are surely a no no. All those have high levels of potassium. Coffee not only contains caffeine, it is high in potassium. It all fits!!!
Eat a meal high in Sodium AND Potassium and you are asking for vertigo!
But restricting salt may be a bad idea as you want the perilymph to expand and dropping salt probably encourages the hydrops to worsen. Just don't go crazy in one meal.
Advice given to menieres patients to reduce sodium makes sense but you need a perilymph pressure to combat the hydrops. It's a tricky balance!! (In any case the etioligy of menieres whilst involving some of the same mechanisms is probably very different and for a reason unknown)
PS Here is that paper that shows massive improvements of hearing and reductions in tinnitus can occur if you reduce endolymph volume in patients with hydrops. Not advocating anyone gets surgery (and definitely NOT destructive surgery) but it demonstrates the relationship between hydrops, hearing loss and tinnitus nicely. It shows how surprisingly reversible it is which counters the doom mongers. http://www.tinnitusjournal.com/articles/tinnitus-report-of-ten-cases-of-perilymphaticfistula-andor-endolymphatic-hydropsimproved-by-surgery.pdf