Has anyone on this forum been able to take Topiramate without the cognitive side effects?
Thanks,
Donna
Has anyone on this forum been able to take Topiramate without the cognitive side effects?
Thanks,
Donna
Yes, me! I had major cognitive problems before taking topiramate, couldn’t find words, didn’t know what gear I was in when driving !) etc. I used to forget how to play my musical instruments which I have been playing for years and sometimes couldn’t even put them together because I forgot which bit went where. Now, on 25mg topiramate, I am delighted to say that has become a thing of the past. Long may it last. I hope I haven’t jinxed it by posting this.
Wow, that’s wonderful. How long have you been on that dose? And do you take it once or twice a day?
I have been on it since January this year having struggled with this disease for almost twelve years. I split the tablet into and take 12.5mg in the morning and 12.5mg at 7.45pm precisely!!! That way I have a constant dose in my system rather than a fluctuating dose which I think helps.
Thank you. Is this the dose you will stay on or will you continue to titrate up? Also, did you experience any weight loss?
This is the dose I am staying on because it works well for me so there is no need to titrate up. The weight issue is complicated by the fact that I have gastroparesis and cannot digest food very well at all. Also I am being investigated for non-hodgkin’s lymphoma so both problems could have caused weight loss. I don’t think such a small dose of topiramate would have had this effect and I was losing weight before I started taking it in any case.
Good luck figuring out all the other stuff! Sounds like a lot to deal with.
Thank you. I have all the scans and biopsies next Friday and then have to wait at least two weeks for the results. Everything always takes so long!!!