Please can you post all your symptoms of Vestibular Migraines, including durations,just a list please thank you in advance x
This is tricky, because there is debate about whether the 24/7 symptoms are down to migraine (Iām convinced there is something else going on and that something else is what triggers the migraine every so often but others feel the migraine may be the cause of all symptoms - iām not so sure)
But a vestibular migraine I believe is usually this:
- episodic (frequency differs by person and month - iāve had them up to 1 every 2 days, or as seldom as twice a month, or none whilst on meds)
- lasts hours (say 2-24)
- strong pulsing in the head element, but usually not that painful, just uncomfortable.
- significant imbalance, you wonāt want to be anywhere but in your bed
- huge motion intolerance and possibly nausea if you attempt to move, very uncomfortable to move yourself or to move or close eyes (best to stare at a spot on the wall)
- sometimes you get a lot of tinnitus, or an escalation of what you already have
There is usually an element of āfalloutā after a migraine. This can cause an increase in your 24/7 symptoms, e.g. imbalance, for a week or two, but they tend to die down to their baseline level after a few days.
I donāt think these are vestibular migraines:
- feeling of spinning (I think these are part of the underlying condition, not the migraine, and related to whatever is going on in the inner ear)
Due to the lack of sufficiently good scanning technology much of this is contentious.
The 24/7 symtoms are:
- imbalance, mostly felt when walking or standing doing something
- nausea
- dizziness when turning
- ear pressure
- tinnitus, hyperacusis, sound sensitivity
- motion intolerance
- visual vertigo:
ā hallucinations eg floor moving when it isnāt
ā intolerance for computer or TV and video, especially scrolling or certain patterns
ā increased dizziness or imbalance when subjected to a lot of artificial light, e.g. in the mall or supermarket
ā movement of water in a bath makes you feel nauseous or funny. - you may find crowds challenging to negotiate
- ābrain shiversā that fail to escalate to a migraine
- twitchy or tight facial muscles
- feeling of ārockingā side to side when moving or had been moving for a while (e.g. running, on a boat), even though you arenāt rocking.
Medication and/or supplements can eliminate the migraines and lessen the 24/7 symptoms, but the only cure Iām aware of is time (and some swear by exercise and a healthy lifestyle)
Hello Everyone,
I have all of the above symptoms and I mean allā¦ Butā¦I was also diagnosed with bilateral endolymphatic hydrops. Many consults rendered me with a diagnosis of MAV. I do not have MĆ©niĆØreās disease, at least thatās what they tell me.
I was told hydrops probably caused my years of Migraine. Heal the migraine, heal the hydrops.
I have had an exacerbation of symptoms in the sense that my visual vertigo has become very problematic where it was not so much before. Past three weeks have been rough.
Seeing a neuro-optometrist next week as I do have issues with my eyes that could be contributing. We shall see.
Hope you find some answers!
Yes forgot to mention that my symptoms are also 24/7. Wax and wane but most there on a daily basisā¦
Thanks for your story, we are still waiting for a definite diagnosis, after initially being told Meniers 3 years ago! Donāt know what to eat anymore.
Had a bad few weeks,attacks every two days,blocked hearing,headaches very dizzy and bed bound for 3-4 hours each time, just started on Amyltriptalineā¦ Life is tough
Hi,
Iām sorry to hear this. Yes, it is tough but hopefully the amitryptline will provide some relief.
Are you experiencing true rotational vertigo? Also, do you have low frequency hearing loss?
MAV symptoms overlap Menieres and one can also have both.
Hi the vertigo,comes in many forms,spinning, horizontal waves, vomiting but not so much actual sickness now just nausea and not hearing loss x
It is difficult to maintain a Migraine diet as well as a Menieres diet.
I follow both and have lost 20 plus pounds.
I try to eat vegetables, chicken, saladsā¦
I miss my chocolate and Cheeses but do sneak occasionally.
All the best to you moving forward!
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No hearing loss points towards MAV. Not that MAV is easy, not at all. I just think a bit less sinister than Menieres due to loss of hearingā¦
Itās so debilitating and all consuming, we are trying not to think of the future itās so hard.
m88bey5567
What are your symptoms and why do you think you have MAV? 
I have not posted mine yetā¦because i am currently only diagnosed with Vestibular neuritis but i think i have Vestibular migraines tooā¦