900 mg is like the starting dose for treating migraine headaches, if u are tolerating it i wonder why your dr wouldnt raise the dose?
He may. Iām not sure what he has planned. I just called him and spoke with a nurse and told her nothing was helping and I couldnāt stand the constant anxiety and dizziness anymore. She spoke with him, called me back, and said that heād like to see me again.
where do u live?
Southern Indiana
have u been able to work during this or are u in school?
I canāt imagine working like this. I was a full-time student, but when I got hit with this, I dropped out a semester, then this most recent semester, I only took two classes. I canāt imagine having a job where I have to work 8-10 hours a day like thisā¦I try not to think about it. Iām a 24 year old loser, essentially. All my friends are off graduating, starting careers, going on dates, starting families, and Iām stuck at home every single night, lucky to even be able to watch some Netflix without feeling awful and hoping on Mvertigo for eight hours trying to find the slightest hint of relief.
Also, Sarah - I know youāve tried quite a few meds of different kinds, and several of them made your symptoms worse. Iām just curious, how long did you take each med? If you can remember.
yup i am a 30 yr old loser too my life ended at 26. i cant remember each one but i tried to stick it out for at least a month if not 2, my dr. said basically 8 weeks max if it isnt helping you then stop it. i think any longer then that for maybe 3 is a waste of time.
I always thought each med had to be trialed for anywhere between 4-6 months before it could be dismissed?
Hi I just wanted to post quickly and say there are solutions!!! I was dizzy/ nausea for almost a year and finally got relief from citalopram and chiropractic care. The chiro and meds helped within a month, but took a few before I was 100%
Everyone finds their own cure. I am convinced that this is from a virus that triggered it, causes neurological damage and that just takes a long time to heal
The ssri s work as a bandaid while u are healing ā¦ Good luck and do t give up hope!!! Soon u will look back and mRvel at your strength and learn how to care and advocate for yourself ā¦ Have been there and know u will come back
Thank you for your encouraging words. I canāt wait to escape from this abyss. Itās been a year straight now, but Iāve only known it was MAV since January. And thatās interesting - my neurologist, Dr. Cherian at the Cleveland Clinic, suggested the same thing about the potential for this to be triggered by a virus. Are you able to live a normal life at this point - primarily work full-time?
Nick, donāt give up hope. I was just diagnosed last month but have had my issues or about 8 months now: constant lightheadedness, kinda dizzy, swaying and rocking sensation, head pressure. I know mine is stress and anxiety related and Iām in counseling for that. Iām starting on a new med tomorrow (even though they terrify me), gonna start the Heal Your Headache diet, exercise more. There are just so many things to try and Iām just so hopeful! Just keep trying and stay strong
Bridget
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Thanks! I was just diagnosed in January. One med down, many to go. Gabapentin didnāt work for me, nor did PT. So Iām excited to see what my neurologist has in store for me. What med are you starting on?
Iām gonna try Effexor. Nervous because of what Iāve read about it but Iāve got to try, ya know?
And I was first diagnosed with MĆ©niĆØreās diseaseā¦what a mind job that was!!! So, for me, being diagnosed with migraine is much better
Yes, I was misdiagnosed with Meniereās for a month or so, as well. Sometimes I feel like that might have actually been better, because at least that comes and goes as opposed to remaining constant, 24/7. That was one of the big hints when I went to the Cleveland Clinic that I wasnāt a Meniereās case, among many other things the more informed doctors there could pick out that doctors back home were clueless to. But yeah, starting new meds always seems like a scary endeavor, but itās so necessary (along with diet). I would do anything just to be able to stand without feeling like Iām going to fall againā¦I canāt believe Iāve felt like this for a literal year straight now. Good luck to you. Iāve seen a few people who say Effexor has helped them. Just give it at least a month but more realistically several months before saying it doesnāt work! And it seems like most meds make us worse before better, so thatās a good sign. It means itās challenging your MAV stricken brain. Which is good.
Thanks Nick! My cell AND my iPad died at the same time last nightā¦lol!!! I just get nervous about meds fooling with my brain. But, Iām tired of the constant headache and dizzy/lightheaded so I have to try. Weāll see
Indeed! Keep us all updated. Good luck to you.
Iāve found since re-entering my life that MAV is very common. A lot of people have no idea they have it. My mom had always had it and didnāt really know why she would feel so crummy sometimes until she read some of the migraine books I had lying around. Anyway, Iām on a ton of meds and doing great. My mom is on two meds at much lower doses than mine and doing great. She frequently tells me about some golf buddy of hers that has these symptoms and now she knows what it is. If the person believes her that migraine can be so weird, they seek help and get better too. So many people never find the forum as others have said. Many are probably like me - got better, resumed life and got crazy, wonderfully busy. I just drop in sometimes to try to spread hope.
Vestibular rehab wonāt help you when youāre really sick. Youāve tried several meds, but you havenāt tried them all. I was as desperate as the most desperate MAVer there ever was. That was 5 years ago and now feels like a past life.
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And good luck on your crash. Hope it doesnāt linger. Is this your first one?
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Thanks Nick, it was short lived and i am back to about 75% - i hope in the next few months i will go higher and higher I have only put on a little weight as a side effect, am a bit irritable at times, but this is a small price to pay for my life back.
Also i know that pizotifen itself doesnāt cause weight gain - it increases appetite which increases weight - got to be disciplined! But i love food! haha!
How are you? I really do know how you feel - the swaying killed me too - walking as a huge issue. Rest as much as you can, but do force yourself to do little walks around the block everyday x