So glad the nausea has gotten better Heart. Maybe it's too soon to notice any significant difference on the Pizotifen as it's a very low dose and also you've had it for so long?
I had the same weird symptoms as you, but after taking them, it got better very slowly, but it wasn't linear progress, 1 step forward then 10 steps back! For me I was able to drive ok after about 6 weeks on them, then gradually walking and doing stuff improved a lot after a few months. I also had help with a vestibular physiotherapist for about 6 months from when I took them.
Liv85, I take 400mg of magnesium glycinate too along with CoQ10 and B2, I think they are helping. I can't take any caffeine either
Glad it works for you without meds, wish I could get off meds and see if the supplements do it for me too, but I know it's a bit of a long haul on them, until I see Dr S in April anyway.