I was recently diagnosed with MAV and came across this forum. It has been so helpful reading what others have been through. My issues began about two years ago when I had a sudden case of vertigo that made me bedridden for days. I was referred to the ENT who diagnosed BPPV. He recommended the exercises, but I found them unhelpful and no improvement. I started having “episodes” monthly that included vertigo, vomiting, extreme headaches. After several tests and lots of visits to specialists, I was referred to neurology and they recommended taking Amitriptyline to see if I improve.
I am SO ready to feel better. It is so hard explaining to someone that doesn’t have MAV what I am experiencing or explaining to coworkers why I am sitting in a dark office.
Thank you for sharing your stories!