Apologies for the duplicate post the same as my other thread.....
Well I must thank you Turnitaround after I finally got to see a whole variety of experts at your suggestion of the Royal National London ENT Hospital today where I spent a good two and a half hours having a variety of tests and consultations, a very well oiled place indeed.
The Consultant says it's not Menieres (good news) and doesn't agree with the last consultants belief that it could be MAV. There is no definite diagnosis but she had a suspicion it could be something to do with Toxoplasmosis. Not sure if I mentioned it before but my optician a few years ago spotted this scar at the back of my eye which by all accounts was millimetres away from making me blind in that eye. I personally had no idea about Toxoplasmosis (I never have had cats) but he suggested that possibly I could have picked up the infection as a child which could be true considering I didn't lose my hearing unto I was two.
So the consultant today said that there could be scarring within my ears as well. Obviously my first vertigo episodes were back when I was 21 and I am now 49 with vertigo attacks at 21, 38 and then two years ago this latest saga started so I asked that question as to why the long gaps and apparently Toxoplasmosis can lie dormant and then come to the fore. She isn't 100% sure but is going to ask my GP for some blood tests to look for something else, although she didn't tell me what!! She also thinks I may possibly have Secondary Hydrops although unsure as to how. Whilst my vertigo is a lot better it's the motion intolerance I suffer with and the tests clearly showed that my eye movement is slightly behind my brain when moving my head so it's that delay that gives the intolerance. The balance mechanism is fairly bad on both sides but fortunately not totally defunct so there is something to work with.
The bad news is that in my case drugs won't help. The good news (I hope) is that the consultant thinks some vestibular rehabilitation may well improve things so I am being booked in to see a physiotherapist for a couple of sessions in London to start with and then hopefully they can transfer me to somewhere more local and I also will have a follow up with the consultant. Unfortunately the waiting list is around 6 months so all this is unfortunately still going to affect my search for work and sadly no pill is going to solve things overnight but I didn't really think that anyway. Fortunately my hearing (or what's left of it) seems stable so hopefully it won't be progressive but I should be prepared for future attacks every few years like I have had up until now, but maybe the blood tests might show something up that can be treated with medication.
So no miracle cures but at least I can rule things out and now at least have a sympathetic consultant who seems determined to get to the bottom of it, so thanks again Turnitaround for pointing me in the right direction.