Hey Jess,
So I actually was in touch with my neurologist because I had a very fast resting heart beat from a few weeks on nortriptyline at 10mg again - 105 resting, and abnormally high when I was exercising last night - he wants me to start on Gabapentin to see if it calls down the nerve overactivity to stimuli without the heart side effects that are kind of dangerous. These are rare, so go figure the med that would be helping me is also causing me side effects (I guess that shows just how strongly I was responding to it). I have to titrate the Gaba slowly I think starting with 100mg/day. I’ve seen a recommendation of 600mg 3x per day as working well for neuropathic pain, so hopefully that will work whenever I get up to that dose. I also wish I could stop this problem naturally but I need to stay in my job and I want to enjoy restaurants and movies again and stuff like that, so I am going to give Gaba a shot and see how it goes. Topa wasn’t good for me with the sulfa allergy so that’s off the table. I hope you feel better and I’ll be trying to keep riding as long as going off the nort and onto Gaba doesn’t cause any problems. I’ve read on this forum that Gaba was the magic cure for some, so fingers crossed… I also have lots of neck tightness. The one thing that does help with that is exercise and swimming, I found, on days I wasn’t too dizzy.
Liv xx