I remember you discussing that propranolol has been said for good inner ear health.. That and it was one of my neurologist's recommendations-- however, the side effect of heart failure I read about gets me a bit nervous. I did a bit of reading on effexor too and the misery of some people on here, especially from the withdrawal from it sounds terrible and I don't think I'd like to put myself through that one bit.
I'd say I have it more decent than most, but I'm still enduring it like the other's. I'm starting to think I'm more headachy than dizzy, but the dizziness is there too. I haven't started a daily log on if I'm dizzy or just headachey or both. I haven't been logging much anymore cause it's turning into somewhat of a blur and I feel as if I focus every day more so on it where I have to annotate instead of "just living." If it's really really bad or really starting to annoy me greatly, then I annotate. I am glad to read your post above and see that you are getting much better even if progress is slow, you at least can enjoy chocolate!!! haha. Hope you continue to improve.
Also, I've been meaning to ask you, were you able to get in touch with that researcher in Missouri?
Thank you for your input, it's helpful and I enjoy talking to people on here, cause it seems no one truly understands how I feel where I am and they'll just alway say it'll pass, but with some disregard, quite possibly because they can't help subdue the symptoms.
I was actually wondering what people start at with CoQ10, especially since I'm sensitive to ingredients as noted with the magnesium pill issue.
Have you noticed being off at all from starting the CoQ10? Reason I ask is because I was that way with the B2, I went up to 400 mg about 100 mg every 4 days or so.
I was looking at CVS for the CoQ10. Radiance Platinum (brand) is what I use for the B2 and I see it for the CoQ10 as well. They have 120 and 200 tho. Nature's Made (Neurologist said this is a good brand due to USP approved) has it as well in 100 mg and 200 mg.. I'd like to start low.
Also, have you noticed the CoQ10 helping in any way?
Good lord, your story sounds awful.. and quite young! I was still in the military then enjoying life at 24. I'm sorry you have to endure any of this and especially so drastically.
I appreciate the heads-up on medicine, since even the supplement magnesium sent me into full vertigo spin. I'm much more sensitive to everything now, so I'm very careful as to what I put in or even try, for fear of the spin again and being set back a good week or so.
When I first started having MAV my eyes would hurt if I moved them up or down. That's when I knew I pushed enough for the day and needed to rest my eyes-- it slowly got better over time. To this day, if my eyes hurt / feel heavy when looking up or down, then I noticed it's time to shut down or I'll push into bad territory.
I'd like to hear your story! I hope you're okay to type then.
Dated information and most doctors trying to apply it-- hahaha, so sad but so true. They might as well stick their head in the sand and wait for you to get better. I wish the ear diagnosing / treatment technology was much better. There's been many people I've spoken to now who have had some sort of vertigo or imbalance issue. A lot of it relates back to an issue with their ear it seems! I'm curious to see what @turnitaround finds out if he can from a researcher he's trying to contact.
That's interesting about the Wii. You could always try with Wii Tennis since it's a bit slow paced and your eye has to follow the ball and there's not too much going on.
I have noticed some games will trigger some sort of dizziness or off-ness. In a video game if there's a background with quick moving animation, for instance, Xbox had this promotion with Honda where you drove a car to the right (side scrolling screen). You continuously moved this car to the right fast, and in the background there's stars going the opposite way much faster as you progressed. When I played that for 5 mins and looked away then looked back, my tv looked as if it was moving to the left or right on the wall (I think it was left), I can't recall which direction but I don't want to experiment to figure it out again haha.
This is what the game looked like in case you're curious, but please take caution if you watch it. I played it several times over to get to the top to try and win a promotion prize, but stopped after awhile cause the movement was throwing me off.
I'm becoming more curious now about medication and their proper uses and what they trigger to block or create more of if they do in fact trigger in a helpful or harmful way-- it would push people to know what helps them by being in a certain category like a beta blocker or serotonin inhibitor, then people would know which prescription medicine category is their helping hand. It's all about taking that step and trying tho with the thought that it may make or break a situation.
Once again, thanks all for reading and your replies. You're like a family who cares/acknowledges/supports.