Hi
I’m new here, I’m 53 and have been suffering with this for 9 months. I really am not even sure of what I have. I have rocking/swaying sensation most of the time. I have an array of symptoms, anxiety daily in some form, rocking/swaying, falling sensations at times, lately feel like when I’m sitting i’m leaning to the left, neck and shoulder pain and tension, headaches that make my dizziness much worse usually for 2-3 days, nausea, when looking down or bending forward feel like I will fall, most of my rocking dizzy thing is when I sit and stand, I have it for a bit when I go to bed but it stops, my head pain is mostly in the neck area up to the front of my head, not usually on one side, my vision is off at times, usually before the dizzy headache comes on, sometime its off with the anxiety and panic i have, when I go in stores I have anxiety but I think its from fear of something going wrong, I did not last week I went to 3 big stores and when i got home i was dizzy and off balance for the night. I have anxiety disorder, so thats not helping me. I also am hypothyriod and when this started last july, I went to my GP who said it was my BPPV back, but the eply’s did nothing, and the neck and head pain was so bad then I went to my neurologist and he did steroid trigger point injections in my upper shoulders and at the base of my skull for the dizziness, well that had a very bad chain reaction onmy thyriod meds, the steriod sent them out of my system and I became so anxious I couldn’t function, we are still working on geting the levels right. So after all this I went to my ENT who is a neuro-otologist and we did the VNG test but when I got to the air in the ear part I got so dizzy they had to stop the test, so he said because of this he can’t tell what is going on, but since I have the headache with dizziness, he thinks it MAV, my quesation is how can anyone tell? I mean I have a headache yes about every 2 weeks that last a couple of days with the worsening dizziness, but not daily and but do have rocking dizziness almost daily, I can get a day or two break in some weeks.
I need help with how to tell, what exactly are symptoms? The ENT wants me to start taking topamax but I can’t, I read all the horrible reviews on it and I’m so sensative to meds I just can’t try it. He said the only way to know if its MAV is to try all the meds and if it goes away then thats what it is. Thats rediculous.
I am also seeing a chiro 3 days a week and have noticed lessening neck shoulder and head pain. Can anyone help me, i"m just lost with this. I also do VRT daily and when I increase the movements in the gaze stabilization exercise I have more dizziness for about 3 days. Is any of this normal to MAV? Please if you can help I would appreciate it.
Thanks you so much