Hi sweetheartsok. My story is a bit long and ongoing so I won't write all of it or you will fall asleep reading it . But since I saw this ENT consultant in February I have seen a neurologist (my second one) who was really nice, (there are nice ones out there). She listened to me, made suggestions but then allowed me to try the medication that I asked for first, that was Zonisamide. Unfortunately I wasn't able to tolerate it (ear pain, burning feeling, ear fullness/pressure, numbness, felt like my head was in a clamp). I then tried her choice which was Amitriptyline, but I had problems again (ear pain, facial numbness, fast heart rate), so I had to stop that too.
I am now back on just a low dose of Propranolol. I have a collection of different medications which I try at lower doses now and again to see if I can get any success, but I am sensitive to ear side effects, I am still a work in progress!! I still do have some dizziness, but it isn't all the time, and it is a lot better than it has been. I have been struggling with stress/anxiety and restlessness a lot more now though.
I have another appointment with the same ENT consultant on the 16th May. And the neurologist on the 5th June.
One thing I did do after my horrible ENT appointment was write a three page letter to the consultant! I find that I can get in quite a state at appointments and unable to articulate what I want to say very well. Also there were two HCAs in the room as well so I felt a bit outnumbered and intimidated.
It certainly does help to know you are not alone. I have found this forum really helpful, not just for information (though it is great for that) but for support as well.
I hope you get more success with your next referral. Neurologists are not all like that one.