Hi Lucielle8,
You are not an easy person to track down. I came across your youtube videos an wanted to get in touch. Sorry for jumping on this thread but wasn’t sure how to get in touch. I have had very similar experiences and symptoms and would be interested to discuss your dizziness. I am now past 10 years and was finally diagnosed about 4 years ago. I definitely understand feeling not normal and knowing that something is wrong. Anyways, hope you are doing okay. Reply back if you would be interested to get in touch.