Hey, everyone. I’m new here and would love to know if this is a symptom other MAV suffers have? It’s really concerning me…
I’m a long suffer of migraines, but was just diagnosed 6 months ago with vestibular migraines after waking up one day feeling like I was spinning and on a boat. Saw an ENT who gave me every test under the sun to rule out positional vertigo, as well as a CT scan. Everything came back normal. He told me he was very suspicious of VM and referred me to a Neurologist who agreed and started me on Topmax which I took for a couple weeks but stopped due to horrible side effects. Haven’t been able to get into my neurologist yet to start a new drug (appointment wait time was 2 months)…so I am currently untreated.
Long story short. Since this started I’ve had this sort of “jelly leg” feeling. But it was manageable.
I had my first huge MAV attack about 6 days ago and have been nearly bedridden because of the extreme heaviness/weakness in my legs and body. I just feel like I’m going to collapse every time I stand up, like a massive weight is pulling me to the ground. I’m so scared this feeling won’t go away…Has anyone else had this feeling with MAV?